Search Results for: "skin cancer"/let-patients-help

February 11, 2012 By e-Patient Dave 57 Comments

I’ve started an RFP for my skin cancer

Be sure to scan the 57 comments readers added, below.

The other day I announced my new skin cancer diagnosis and discussed how I’ll blog my approach to it as an e-patient.

I’ve decided to explore my options by doing what companies do when they’re shopping for a solution: they write a Request for Proposals, and let vendors reply. But in this case what I published isn’t cast in stone – I invite discussion and suggestions. And, significantly, I start with the context: partnership; participatory medicine –

I’m approaching this through an RFP process because I believe in “participatory medicine,” in which patients play an active and responsible role in all aspects of healthcare. I believe patients should play an active role in making care more cost-effective and patient-centered, by being responsible about costs and by saying what they want.

Here’s the RFP, in Google Docs. At top right of that page there’s a place to leave comments, or discuss here. Thanks for helping!

Update: This triggered an enormous amount of discussion on social media, additional posts here (with the results of my shopping), and even an article four years later in the New York Times, which I posted about with additional thoughts and resources. [Read more…]

July 13, 2018 By e-Patient Dave Leave a Comment

“What will this cost?” Episode 4 of Power of the Patient, with Clear Health Costs

Episode 4 of the Power of the Patient podcast is live here.

Want better control over your health costs? Investigative journalism has finally come to healthcare, and it’s winning prizes bigtime.

My guest Jeanne Pinder is a former New York Times editor whose company Clear Health Costs has just won the Edward R. Murrow award for investigative journalism, for their contribution to the “Cracking the Code” series in New Orleans. [Read more…]

New Orleans investigative reporters expose health cost craziness, with ClearHealthCosts

Video of the first episode is below.

Last updated April 10, 9:30 pm ET.

Regular readers know that among my various causes – patient-centered care, patient access to our medical records, etc – is the importance and challenge of managing our health costs. For years I’ve blogged about my own experience – see the list of posts below. Occasionally I’ve blogged about my friends at ClearHealthCosts, who have been busting their butts to … well, make health costs clear. And for years I’ve wished we had more public attention on this crazy situation. Because when costs are chaotic, it can be hard to get the care your family needs without getting hurt in the process. How ironic is that?

So I’m thrilled to say that WVUE in New Orleans (“Fox 8 NOLA”) started a new series April 5, “Cracking the Code: The Real Cost of Health Care,” followed immediately by a print series by the Times-Picayune‘s Jed Lipinski. From what I’ve seen so far, each is spot-on. ClearHealthCosts is a big part of the project.

To my surprise a simple Skype interview that I did was used in the first TV episode. I can’t wait to see more.

It’s all new so for the moment I’m quickly adding this page to my site … I’ll update it when I can. For now, here’s video of the first episode, and below are my past posts on health costs. I hope it helps.

FOX 8 WVUE New Orleans News, Weather, Sports, Social

My past posts on figuring out health costs

You can also browse my entire cost-cutting category.

4/12/16: The difficulty of shopping when they hide the facts: that skin cancer RFP in the NY Times

9/11/15: Article in USA Today soon with my opinion on costs, and online advice

3/11/14: How much should/could this pathology cost? (Skin cancer biopsies)

2/7/14: A new era: the “consumer-patient,” via Inquire Healthcare

6/5/13: “Chaos, behind a veil of secrecy”: Show me the cash flow

4/25/13: The reality of shopping for health insurance (pre-Obamacare)

3/25/13: An encounter with the Swiss medical system

3/11/13: The Big Ugly continues: “Hospital charges bring a backlash”

3/4/13: Let Patients Help, Cost-Cutting Edition: “Chaos behind a veil of secrecy”

1/6/13: Pricing visibility – video interview with HealthWorks Collective

12/11/12: Reprise: The healthcare waste pit is BIGGER than the fiscal cliff.

11/11/12: Great Robert Wood Johnson video “This Cost How Much?”

10/1/12: Perceptions creating reality: the scapegoat dynamic and the role of the patient

6/16/12: A dermatologist responds: “Who the heck is charging $3000 for Mohs first stage?”

5/21/12: Raw numbers for treating my basal cell carcinoma at three hospitals

5/10/12: Decision: Just scrape it off. (“ED&C”)

3/25/12: Let Patients Help, Cost-Cutting Edition, Part 3: Shopping for my next CT scan

2/20/12: It turns out being an engaged patient/consumer takes time.

2/11/12: I’ve started an RFP for my skin cancer

2/9/12: Time to practice what I preach: I have skin cancer again.

1/9/12: Let Patients Help, Cost-Cutting Edition, part 2: Shingles vaccine

11/5/11: Let Patients Help, Cost-Cutting Edition, part 1: a bill.

August 21, 2014 By e-Patient Dave 20 Comments

Six month countdown to Medicare! What do I need to know?

65th birthday cake by Oana Go (Germany). Click to view project on Craftsy.

Yesterday I blogged about my business’s fifth birthday … and this week, it turns out, marks six months before I turn 65!

And that means I go on Medicare.

I’ve learned enough in these five years to know at least two things:

You’re a patsy if you think the American medical system will necessarily take care of you. It might, but if it does, it may be in the process of making itself a boodle of money.
- Yes, there are many exceptions – individuals and organizations who care and who work hard. But I’ll repeat: you’re a patsy if you sit back and assume the system will take good care of you.

When it comes to money in American healthcare, don’t expect anything to be explained clearly.
- 18 months ago I blogged about a famous policy paper, Hospital Pricing in America: Chaos Behind A Veil of Secrecy by Princeton economist Uwe Reinhardt. That paper was published 8 years ago, and hardly anything has changed. (The title of the article is real and not an exaggeration.)
- In 2013 I lived the chaos and the veil myself, in my own shopping for everything from CT scans to shingles vaccines to skin cancer treatments. I saw at close range that Reinhardt was not exaggerating, and I blogged it in a series called “cost-cutting edition.”

There are signs of hope, such as ClearHealthCosts, but although I work for change, I’m not waiting for the posse to save me.:-) I’m gonna be pro-active, engaged, empowered, responsible! I want to get educated, because I’ll be on Medicare for the rest of my life. And I want to approach the education from the patient’s perspective … not what the system wants to tell me, but what people like me have found necessary.

So, you who’ve been through it: what do I need to be aware of? What choices will I need to make?

I do know these things about Medicare: [Read more…]

May 21, 2012 By e-Patient Dave 86 Comments

Raw numbers for treating my basal cell carcinoma at three hospitals

The morning-after edits, originally marked in italics, have been “accepted” (to borrow Word’s term) to show the final text.

Here are the results of my cost shopping research to get my skin cancer (basal cell carcinoma, aka BCC) removed. The first edition was done in a hurry because the #bcsm (breast cancer social media) Twitter chat was happening, discussing costs and shopping, and they asked to see it.

It started in February when I decided to be proactive about finding out what this would cost me. I have $10,000 deductible insurance, so this is all coming out of my pocket. In previous months I’d gotten sick & tired of getting unexpected medical bills, and people at the hospital and insurance companies having wrong answers or no answers about “What’s this going to cost?” (CT scan, shingles vaccines) So, this time I published an RFP (request for proposals), the same way any business would do when making a substantial purchase decision. The RFP started:

Summary: I seek a care partner to remove a basal cell carcinoma (BCC) from my left jawline, under the ear. For a brief introduction, see blog post and photo (low quality) at http://bit.ly/ePDaveBCC.

I’m educating myself about the condition, I want to explore the available treatment options, and I’m “shopping” for a partner to do the work and follow-up with a good combination of quality, partnership, and cost.

It was a crazy thing to do, because hospitals don’t have RFP response departments (as many businesses do), and I was sure my request was largely uninformed. But I sure learned a lot from the comments on that blog post.

[Read more…]

March 25, 2012 By e-Patient Dave 20 Comments

Let Patients Help, Cost-Cutting Edition, Part 3: Shopping for my next CT scan

Since November I’ve been blogging about what happens when a patient tries to help control costs, in my cost cutting edition posts. Most recently I noted that this stuff takes time, especially since our glorious American healthcare system seems to be set up to block our access to what things actually cost … or at very best, we have no channels and pathways to let us find the information.

Well, ladies and gents, I’m fed up. I have to get on with life. I’ve been trying to be a responsible, engaged patient, and if the established channels won’t make it easy for me to find out what I need to protect myself, I will blow the whistle, announce what I’ve found so far, and move on. And we’ll take it from there.

I’m leaving tomorrow for 11 days of work in more sane countries – Switzerland and Holland – so I’m going to report the status here.

A caution and apology at the outset: I expect this will be read by some of the people I’ve spoken to at these companies. A lot of the frustrations I express here are because we couldn’t connect. I am grateful for your effort; you’re just too hard to reach, which is a problem if you’re the only one at your company who can help with this kind of work. I will appreciate your continued effort as we work through this change in American healthcare.:)

Later I’ll blog about the results of my research into my basal cell carcinoma. But for today, let’s just look at the simple (you would think) matter of getting an important CT scan.