A quick update – earlier this month I posted about presenting at the AANP convention (American Association of Nurse Practitioners) in Nashville. Here are links to the sites I mentioned. (I love it when people ask because they want to take action!) [Read more…]
Search Results for: let-patients-help
Recent events and postings, March 14
Corrected Saturday afternoon: “Stanford” should have been “UCSF” (University of California, San Francisco)
Boy, is the pot starting to bubble. Word about participatory medicine is spreading, and there are signs that it’s starting to follow the trajectory of other cultural movements. News and posts elsewhere in the past week:
e-Patients.net: Surgeon: “Participatory Medicine encourages partnership between patient and provider”
There’s a stage in every movement where it starts to get discovered by people in the establishment who weren’t among the founders. And there’s another stage, when that person’s discovery spreads into mainstream media. That happened Thursday, in Richmond VA, when a cardiac surgeon wrote a piece with the title above, including this:
Today, there is a movement afoot — one that is welcomed by me and many of my colleagues. It’s a change that I hope will become the norm when it comes to the physician-patient relationship. It’s all about partnerships between patient and provider.
To hear a surgeon say that – one who just met us recently, at last fall’s Medicine X conference – is hot stuff. It’s especially important that none of the society’s founders were involved – the discussion now has a life of its own.
e-Patients.net: Words Matter – Let’s Reconsider the Term “e-Patient”
Site’s links and menus are temporarily broken. (Thanks, Bluehost.) What to do.
Update two hours later: this is fixed. See the resolution and further thoughts in the comments.
This seems to me to be a great example of a process that wasn’t designed reliably, so all kinds of things could be done per the plan yet the result still didn’t work. I’d like to work with them to define a better process. (We need to have the same approach to system failures in healthcare!)
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By the end of this weekend things should be back to normal, but right now links to this site’s pages are broken. The site is mangled due to a bad migration of my site to web hosting company BlueHost.com. (I’m naming them because every step I took was as directed by them, and because their techs assured me this wouldn’t happen.)
Specifically, the home page URL www.epatientdave.com is working, but the links to pages within the site are broken. So, for instance:
[Read more…]
New wheelchair icon nails the shift to “empowered and engaged”

My Twitter feed was abuzz yesterday with last week’s Boston Globe article by Billy Baker, Wheelchair icon revamped by guerrilla art project, and boy am I glad: aside from being a great story, it sums up everything I’ve been trying to explain about the shift to patient engagement.
I’ve spent time in a wheelchair, I used to teach in a school for handicapped kids, and my wife sometimes uses a chair, especially in airports. The usual view of the chair-bound person is as limited, confined, less able. In some ways that’s valid, but too often it’s overdone. Look at this photo, and compare the new icon with the one in the back:
- Old: Occupant is sitting, being wheeled around.
New: Occupant is in power, leaning forward, doing as much as s/he can. (Their site says “Here the person is the ‘driver’ or decision maker about her mobility.”)
- Old: Occupant seems to be part of the chair.
New (per the Globe): “the human [is] distinct from the chair, in an active position, with a feeling of forward movement.”
I’ll extend the metaphor: [Read more…]
My best friend has died.

The smartest man I’ve ever worked with, my best friend, died unexpectedly this week. I’m en route to Tel Aviv for his funeral. He’d been having significant swings in his health, and this time, just as it seemed there was a breakthrough, time ran out.
His name was Dorron Levy, and my daughter describes him to friends as the Israeli version of me. He taught me how to think about complex problems. He taught me to be very picky about coffee. His family and I fell in love. And he taught me how to construct a speech in a way that it opens a big question in an audience’s mind and then fills it, leaving them with a new view of how the world works.
He loved books, he loved solving impossible problems, he loved learning, and he loved teaching. (He once said the biggest compliment was to hear “You really taught me something.”) He loved digging down into the deep underlying causes. And when that led to solving an impossible problem, the glee on his face was a wonder to see. And as a dual citizen – born in Denver to Israeli parents – he was extremely astute about differences in culture.
I worked with Dorron at Indigo America in the 1990s, [Read more…]
Courses

Update: It’s announced! See the announcement blog post.
I’m thrilled to announce that the University of Minnesota School of Nursing has created an online six module Continuing Education course, Patient Engagement in Health IT, based on the book Let Patients Help. You can sign up to be notified by them when more information is available.

This is a commercial course specifically designed for nurses, but it’s open to purchase by anyone.
As the more information sign-up page says:
This interprofessional course prepares you to implement strategies to engage patients in use of health information technology for personal health information management. The focus is on identifying opportunities to engage patients, identifying barriers and resources, and creating a plan for your organization.
We anticipate the course will be ready for registration about January 1, 2014. Please provide your contact information and we will email you further details in the near future. …
The price will be announced soon – not cheap-cheap but nowhere near the cost of some courses.:-) That’s because we hope it will be used far and wide.
I haven’t seen the finished course yet, but I can’t wait! Thanks to the visionary people at the U of M School of Nursing for their industrious work in making this happen.
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