Search Results for: schedule

This is the archive of past events, through 2015.
More recent and upcoming events are on the Schedule page.

2008-2009

• October 2008, Boston: Connected Health (with Danny Sands): “Illness in the Age of ‘e'” Hosted by Mike Barrett.
• February 2009, Palm Springs: TEPR+ 25th Annual Conference (with Danny Sands): “Illness in the Age of ‘e’.” Hosted by Peter Waegemann.
• April 2009, Boston: Health 2.0 Meets Ix. Panelist and “balcony speaker.” Hosted by Matthew Holt and Josh Seidman.
• May 2009, Washington: Center for Democracy and Technology. Think-tank meeting in health data privacy and sharing. Hosted by Deven McGraw.
• June 2009, Washington: National eHealth Collaborative board meeting. 24 minute address (video on e-patients.net) to board. Invited by Steve Findlay, Consumers Union.
• June 2009, Washington: Privacy Committee of NCVHS, hearings on Meaningful Use. HHS committee meeting on definition of meaningful use. Hosted by Maya Bernstein, J.D., HHS Privacy Advocate
• July 2009, Washington: Patient-Centered Primary Care Collaborative annual consumer advocacy day. Hosted by Edwina Rogers, PCPCC president.
• Wednesday, Sept. 16, Toronto: HealthCamp Toronto (Unconference) Hosted by Carlos Rizo and Neil Seeman.
• Thursday-Friday, Sept. 17-18, Toronto: Medicine 2.0 Conference. Opening keynote address: “Gimme My Damn Data!” Hosted by Gunther Eysenbach.
• Monday, October 5, Oakland: HealthCamp SFBay (Unconference)
• Tuesday-Weds, Oct. 6-7, San Francisco: Health 2.0 Panelist. Hosted by Matthew Holt.
• Wednesday-Thursday, Oct. 21-22, Boston: Connected Health Symposium. Co-presenting with Dr. Danny Sands: “Revisiting a Data Gaffe, Six Months On: What’s Been Learned, What’s Changed — and What Still Needs To.” Hosted by Mike Barrett and Joe Kvedar.
• Monday-Tuesday, Oct. 26-27, Philadelphia: ePatient Connections 2009. Presentation Monday afternoon. Hosted by Kevin Kruse, Kru Research.
• Monday, November 9, New York: Paley Center for the Media workshop on public media’s involvement in public health. Sponsored by the Ford Foundation’s Freedom of Expression program.
• Tuesday, Nov. 10th, Alexandria VA: 5th Annual World Health Care Innovation and Technology Congress (WHIT). Panel led by Ted Eytan MD: “Beyond the PHR: Promoting participation at all levels: internal and external; patient, family, community,” with cancer widow Regina Holliday and Holly Potter, Vice President for Public Affairs and National Stakeholder Management, Kaiser Permanente.
• Thursday, December 3, Boston: Medical Grand Rounds at Beth Israel Deaconess Medical Center (with Danny Sands, MD, MPH)
• Monday, December 7, San Francisco: Quantified Self Show&Tell at Wired. Topic: “The Quantified Patient.”
• Tuesday, December 8, San Francisco: HIMSS regional meeting at Microsoft, 835 Market St, noon. $25 HIMSS members, $55 non-members, $35 HFMA members.
• Monday, December 14, Washington: CPeH (Consumer Partnership for eHealth) Patient Engagement Forum: How Access to Information Can Empower Patients and their Caregivers. At National Partnership for Women & Families .
• Tuesday, December 15: eHealth Initiative – Webinar on Participatory Medicine, 3 pm.

2010

• Monday-Tuesday, January 25-26, 2010: eHealth Initiative’s annual conference, Washington. Panelist.
• Tuesday, January 26: “Health 2.0 Stat – rapid fire presentations from healthcare leaders.” Silver Spring, MD. Presenter.
• Monday-Wednesday, January 25-27, 2010: Medical Device Plug-n-Play workshop, Silver Spring, MD. Plenary speaker.
• February 8-10, Philadelphia: ePharma Summit. Speaking Tuesday 2/9. Sponsored by Klick Marketing
• February 23, Wellesley MA: Rotary Club dinner speaker. Topic: “How I Survived My Death Sentence.”
• February 25, Washington: Health IT Policy Committee, Adoption/Certification Workgroup: hearing on Health IT Safety issues. Omni Shoreham Hotel.
• March 1-4, Atlanta: HIMSS 10th annual congress (Healthcare Information Management Systems Society). Speaking with Kate Christensen MD of Kaiser-Permanente on “Inviting Patients to the Party: Patient Advisory Boards in an IDN.” (Session #128, Tuesday, 2:15-3:15.)Sponsored by KP.
• March 8-12, Boston: Annual Quality Improvement Workshop at Beth Israel Deaconess. My first foray into Lean methodology.
• March 12-16, 2010, Austin, TX: South By Southwest Interactive. Panelist.
• Monday, March 22, Philadelphia: Center for Business Intelligence, 9th Annual Forum on eMarketing for the Bio/Pharmaceutical Industry. Workshop leader.
• Tuesday, March 30, DC: Cultivate the Patient-Centered Medical Home– PCPCC stakeholders meeting.
• Monday, March 29 and Wednesday, March 31: DC Policy Days. Available to schedule meetings; see contact page.
• Tuesday, April 6: Person Centered Health Roundtable via Cisco Telepresence. Speaker. (Will be in the DC office.) Free to the public, in person or via Webex.
• Tuesday-Wednesday, April 6-7, Bethesda, MD: National Library of Medicine / FNLM event “The ePatient: Digital and Genomic Technologies for Personalized Health Care”. National Institutes of Health, Natcher Conference Center. Twitter hashtag: #eNLM.
• Thursday, April 8: DC Policy Day.Available to schedule meetings; see contact page.
• Thursday, April 15, Waltham MA: Healthcare and Life Sciences 7th Annual Industry Forum, Babson College. Panelist on “The Impact of Social Media on Health Information.”
• Saturday, April 17, Weston MA: Guest lecturer, Regis College Nursing Informatics program. Associate professor Kathleen Donaher.
• Tuesday, April 20, Washington: Meaningful Use Workgroup policy meeting (agenda (PDF)). Public meeting (as are all HHS policy meetings) at Renaissance Dupont Circle Hotel, 1143 New Hampshire Avenue, NW. 9 am to 3:30.
• Book launch and jazz show! Join me for a magical musical interlude: April 22, Boston: my sister jazz/blues singer SUEDE at Scullers Jazz Club, 8 pm. As always, the show is about the diva; we’re using the occasion to also celebrate my book, due out in June. Join us!
• Monday, April 26: Webinar “Becoming an e-Patient” (free) – WEGO Health
• Thursday-Friday, April 29-30, Cary, NC: PALS Patient Advocacy Leadership Summit. (PALS is a program of GlaxoSmithKline.)
• Monday-Wednesday, May 3-5, 2010, St. Paul: Institute for Clinical Systems Improvement annual colloquium.
  • May 4: Panelist, “evidence-based medicine vs. experience-based medicine”
  • Keynote May 5: “What e-Patient Dave Wants from Doctors, Hospitals, and Health Plans in a Time of Health Care Reform and Economic Uncertainty.” Hosted by Kent Bottles.
• Thursday, May 6, 2010
  • 7 a.m.: Lecture to clinicians, Park Nicollet Frauenshuh Cancer Center, St. Louis Park, Minnesota. (Private event.)
  • Noon: Plymouth (MN) Rotary Luncheon. Guests welcome ($14); reservations required. Radisson Hotel, 3131 Campus Drive.
  • Visiting CaringBridge headquarters!
• Saturday, May 8, 2010: Mayo Clinic Medical Edge Radio with Tom Shives, MD.
• Tuesday, May 11, 2010, Toronto: private client event.
• May 13, 2010, Washington: Aligning Forces for Quality national meeting. Panelist: “Using Health Information for Decision-Making: The Consumer Perspective.” (AF4Q is a Robert Wood Johnson Foundation initiative.)
• May 17-19, 2010, Orlando: National Patient Safety Foundation‘s Annual Patient Safety Congress. Speaker at pre-Congress program (May 17) titled “Community Engagement from the Patient and Family Perspective.”
• May 20, 2010, Boston: Capstone Partners Patient-Centered IT investor event. Speaking with author Jim Champy and others at Microsoft NERD, Cambridge.
• May 22, 2010, Washington: Medical Library Association e-Patient Symposium. Speaking with “73 Cents” artist Regina Holliday on “Participatory Medicine and Consumer Advocacy.”
• May 25 – 27, 2010, Amsterdam: World Congress on IT 2010 – The Challenges of Change.
  • May 25, Keynote speaker in eHealth track’s Transformation Day.
  • May 27, Closing panel on “Declaration of Amsterdam.”
• June 3, Washington, DC: AHRQ Annual Health IT Grantee and Contractor Meeting.Keynote speaker.
• June 4, New York: private event. (Krames Patient Education’s Health Plan Summit)June 7, Waltham MA: Course in Health Law and Business Ethics, Heller School for Social Policy and Management, Brandeis University. MD/MBA Dual Degree Program offered in collaboration with Tufts University School of Medicine. Guest Lecture.
• June 15, Boston: Liberty Lectures – Liberty Hotel. Lecture with Dr. Danny Sands: “The New World of Doctor-Patient Partnerships.” Free, but RSVP required:libertylectures@libertyhotel.com.
• June 17, Toronto: Ontario Hospital Association – Redefining Patient Centred Care: What Does It Really Mean? Keynote speaker.
• June 18, Newton, MA: Free Kidney Cancer Symposium sponsored by Dana Farber / Harvard Cancer Center. Details and how to submit questions here. Speaker, patient coordinator.
• June 26, 2010, Kiawah Island, SC: American Academy of Private Physicians, Regional Summit. Closing speaker
• July 22, 2010, Washington: PCPCC Stakeholder Meeting. Patient advocate; attendance sponsored by PCPCC. See the archived presentations.
• July 28-29, 2010, Philadelphia: Center for Business Intelligence, Bio/Pharmaceutical and Medical Device Forum on Patient Centered Marketing: “How Does the Patient Want to Interact with You?” (Panelist, 9 am Thursday)
• July 29, Washington (evening): “e-Patient Ephemera” showing of Regina Holliday’s paintings at Clinovations, Georgetown.
• Sunday, August 15, 2010, Cleveland: Cleveland HeartLab Summer Symposium. Speaker.
• August 17, 2010, Cambridge: 9th National Quality Colloquium, Harvard. Keynote, 11:15-11:45: “How Engaged ‘e-Patients’ Are Improving Balance in the Patient-Provider Relationship.”
• August 18-19, 2010, Atlanta: Centers for Disease Control National Conference on Health Communication, Marketing, and Media. Plenary panel.
• September 15, 2010, Montreal: Private event.
• September 20, 2010: Vertex Pharmaceuticals e-Patient Advisory Board, Cambridge
• September 22, 2010:
  • St. Paul: Private Event
  • Minneapolis: Private Event
• September 23, 2010, Rochester, NY: Worksite Health Alliance of Greater Rochester,Keynote. See event summary and registration.
• September 24-25, 2010, San Diego: Proleukin Patient Summit. Advisory Board member and keynote speaker.
• September 28-29, 2010, Philadelphia: e-Patient Connections 2010, Keynote and book signing.
• September 30, 2010, Boston: US Army Medical Department Physician Champion Conference. Plenary address to physicians deeply committed to electronic medical records.
• October 6-8, 2010, San Francisco: Health 2.0. Patients 2.0 panelist.
• October 11, 2010, Seattle: Swedish Medical Center’s 100th anniversary – pre-conference “Heathcare Innovation in the Age of Social Media.” Opening Keynote.
• October 14, 2010, Las Vegas: Blog World Expo – healthcare track. Opening Keynote
• October 15, 2010, Columbus: Ohio State University Medical Center – Advancing Predictive, Preventive, Personalized and Participatory Medicine. Panel led by Michael Milllenson
• October 21-22, 2010, Boston: Connected Health Symposium.
  • 10/21, 10-11: Panel discussing opening keynote by BJ Fogg.
  • 11-12: Book signing at Harvard Coop exhibit.
  • Noon ET: ONC Webcast on Patient & Family Engagement.
• October 22-23, Cambridge MA: MIT Alumni Association. Addressing alumni luncheon; receiving service award.
• October 25, Durham, NC: Duke University Institute on Care at End of Life. Keynote.
• October 26 – 29, San Diego: TEDMED. Analyst for Robert Wood Johnson Foundation. (Can I say “Woot”?)
• November 2, Portland OR: OCHIN (Oregon’s Regional Extension Center). Keynote.
• November 3, Los Angeles: Zocalo Public Square. Panel.
• November 4, Boston: Medically Induced Trauma & Support Services (MITSS) annual dinner and auction. Opening speaker; auctioning copies of my book.
• November 6, Austin: American Academy of Private Physicians.
• November 8-9, Boston: Eye For Pharma, Boston – eMarketing. Panelist; signing books.
• November 8, Weston MA (evening): “The Regis Lectures: Current Topics in Health Professions.” Opening speaker in a new lecture series.
• November 15-16, Washington: American Medical Informatics Association annual symposium. Panelist with Charles Safran MD, Tom Delbanco MD, and Patti Brennan of Project HealthDesign, 10:30-12 on 11/16: “Patient Power from the Clinician’s Perspective.”
• November 17, Danvers, MA: NAMI – patient advocate workshop. (Invitation only.) Keynote, 8:30 a.m.
• November 23, Boston: Aligning Forces for Quality Consumer engagement framework.Attending.
• December 3, Wellesley: Harvard Pilgrim Health Care. HPHC was my insurance company when I was sick, and treated me great. I’ll be addressing an internal employee meeting.
• December 7 – 8, Orlando:Institute for Healthcare Improvement Annual Forum. Special Interest Keynote with Dr. Danny Sands.
• December 9, Brentwood, Tennessee: Aegis Healthcare (private meeting). Keynote.
• December 12-17, Salzburg, Austria: Salzburg Global Seminar: “The Greatest Untapped Resource? Informing and Involving Patients in Medical Decision Making.” Participant; gave a short talk.

2011

• January 5, 2011, Boston area: Health IT meeting (private).
• January 15, Raleigh-Durham (via Skype): National Association of Science Writers Science Online conference. Participating in panel with e-patients.net co-founders Joe & Terry Graedon, 2-3 pm.
• January 19, Boston: Northeast Home Health Leadership Summit. Closing address for day 1, 4pm. Sponsored by Home Care Association of New York State.
• January 24: Visiting Nurse Association of Care New England annual meeting, Warwick, Rhode Island.
• January 26, Washington: Foundation for Informed Medical Decision Making Research and Policy Forum.Participant.
• January 26, Washington: Military Health System Conference: The Quadruple Aim: Working Together, Achieving Success. Gaylord National Conference Center. Keynote, 3 pm 1/26.
• January 31: Society for Participatory Medicine quarterly board meeting.
• February 4, Boston: Private meeting.
• February 7-9, New York: e-Pharma Summit (book signing with Klick Pharma); panel 2/8
• February 14, home: delivering Singing Valentines with my quartet.
• February 15-16, Washington: National Integration Academy Council meeting (project of AHRQ).
• February 18, Orlando: Prova Education symposium “Integrated Management of Patients with Renal Cell Carcinoma” at ASCO conference.
• March 3-4, Washington: Institute of Federal Health Care policy meeting. Participant

• March 9, Boston:
  • Recording an interview (with Dr. Danny Sands) for People’s Pharmacy radio show to be aired later.
  • Massachusetts General Hospital – Patient Safety Awareness Week. Keynote.
• March 13, Philadelphia: “Authors and Experts” dinner, Thomas Jefferson University. Featured author; book signing. In association with Population Health Colloquium.
• March 24, London: Announcement of the Salzburg Statement on Medical Decision Making. British Medical Journal, Tavistock Square. Participant.
• March 25, Copenhagen: Seminar on Common Strategy for IT support for Patient Empowerment. Keynote.
• March 26, Boston: New England Quality Care Alliance. Keynote.
• April 4, Netherlands: TEDx Maastricht “Fueling the next revolution in Medicine & Health” –keynote

• April 6, Jerusalem, Israel: Legal and Ethical Dilemmas of Online Medicine. Speaker.

• April 7-9, Lucerne, Switzerland: Institute for Communication & Leadership (IKF). Meetings, lecture Saturday.

• April 11-12, Copenhagen: Danish Society for Patient Safety Conference. Keynote Monday with Dr. Danny Sands. Program here(PDF).
• April 14, Austin: Texas Library Association Annual Conference. Keynote.
• April 15, Seattle:
  • Ragan Communications / Swedish Hospital Social Media conference. Closing keynote, 11 a.m.
  • Mayo Clinic Social Media Advisory Board Meeting, afternoon
• Thursday, April 21, Washington: Health IT Certification/Adoption Workgroup hearing on usability of EHRs. Public meeting (as are all HHS policy meetings) at Renaissance Dupont Circle Hotel, 1143 New Hampshire Avenue, NW. 9am to 5pm.
• April 25, Philadelphia: National Board of Medical Examiners – meeting to discuss Participatory Medicine. With Dr. Danny Sands and NBME staff.
• April 27, Derby, CT: Patient Centered Accountable Care – live event & webcast, hosted by Griffin Hospital and Planetree. Attending.
• May 3, New Jersey: Private client event with my client Klick Pharma.
• May 10-15, Stanford: FutureMed (Singularity University). Faculty, 5/13.
• May 14, Stanford: TEDx Silicon Valley. Attending.
• May 16-18, St. Paul: Institute for Clinical Systems Improvement annual colloquium. Workshop leader on 16th.
• May 20-22, San Francisco: Conference for Global Transformation. Conference production team.
• June 7, Washington (evening): Regina Holliday’s Walking Gallery.
• June 8, Washington: Healthcamp DC. Unconference for health IT innovation.

• June 9, Natcher Library, Bethesda MD: HHS Health Data Initiative Forum. Attending, hope to participate.
• June 10, Washington: HHS Healthcare Innovation Summit. Invited participant.

• June 14, Washington: Computers, Freedom & Privacy conference. Panelist, 3:45-5:15
• June 15-17: private meeting
• June 19-22, Maastricht, Netherlands: 6th International Shared Decision Making conference. Speaker and research partner panelist.
• June 27-28, Denver (via phone): National Integration Academy Council meeting (project of AHRQ).
• July 5, Bilbao, Spain: Pacientes y profesionales en la Web 2.0(Patients and Professionals in Web 2.0)

• July 6-7, Barcelona: Private meeting.

• July 12, San Francisco: MIT Alumni Club, University Club.
• July 13-14, Oakland: Kaiser Permanente National Quality Conference. Keynote.
• July 15-17, Cambridge: O’Reilly Media Health FOO Camp. Participant.
• July 19, via Skype: HCA – internal meeting: mini-kickoff speech
• July 20-21, Atlanta: National Coordinator for Health IT – Meaningful Use workshop.Plenary speaker.
• July 27, 1 p.m. ET, online: TED Conversation (live one-hour event; click for archive)
• July 30 – August 2, Lake Tahoe: American Board of Internal Medicine Foundation Forum. Patient participant.
• August 3-4, Twin Cities: National Coordinator for Health IT – Meaningful Use workshop. Plenary speaker and panelist.
• August 9, Washington: NeHC Consumer Consortium full meeting. Steering Committee.

• August 10-11, Los Angeles: National Coordinator for Health IT – Meaningful Use training. Plenary speaker.
• August 16-17, St. Louis: Health Literacy Missouri. Consultation on consumer engagement.
• August 30: Dartmouth Summer Institute for Informed Patient Choice. Patient advisor, speaker
• September 8, Cleveland Clinic: Aetna Leaders Conference. Keynote.
• September 9, Boston: Best Doctors, Inc. – private meeting
• September 11-13, Rochester MN: Mayo Clinic Center for Innovation – Mayo Clinic Transform 2011 symposium. Plenary speaker and panelist.
• September 14: Mayo Clinic School of Dental Specialties. Grand Rounds.
• September 14, evening: Private event – guest speaker on national sales team call.
• September 15, Cincinnati: Care About Your Care – Cincinnati. Keynote.
• September 19-20, Philadelphia:
  • SxSH – Shwen Gwee’s social media health care unconference. Keynote.
  • Digital Patient Bill of Rights – one of 20 patients in dialog led by Klick Pharma, HealthCentral, and Digital Health Coalition
  • e-Patient Connections 2011. Gave opening welcome statement.
• September 21, Bethesda: AHRQ National Meeting. Panelist as part of NIAC team.
• September 24-30, Nijmegen (Wikipedia):
  • Tuesday morning: Video interview (post here)
  • Tuesday evening: e-Patient Workshop (post here)
  • Wednesday: e-Patient Boot Camp EU. Full day seminar, part of REshape Academy atRadboud University Nijmegen (UMC St. Radboud).
  • Thursday: departmental meetings about patient engagement and social media
• October 6, Chicago: Merge Healthcare “Merge Live” user conference. Keynote.
• October 7, Columbus: The Ohio State Medical Center P4 Conference. Panel moderator.
• October 14, Buffalo: P2 Collaborative of Western New York. Keynote: “Patient-Centered Health and Health Care.”
• October 17-21, Mayo Clinic, Rochester, MN:
  • 17-19: Ragan / Mayo Clinic Center for Social Media. Closing keynote.
  • 19-20: Mayo Clinic Center for Social Media (MCCSM) meeting. Advisory board member.
  • 20-21: MCCSM Residency. Faculty / advisor.
• October 25-28, San Diego: TEDMED. Participating (in audience) as a Robert Wood Johnson Foundation “Pioneer” observer.
• October 31, Denver: University of Colorado Division of Family Medicine – Levitt Distinguished Speaker Series.
• November 7, online radio: Stupid Cancer Show. Guest at 8:45 pm ET.
• November 9-11, Washington: Aligning Forces for Quality annual conference. (A Robert Wood Johnson Foundation project.) Keynote and closing panel.
• November 10, Salt Lake City (via satellite): Beacon Community Learning Session.
• November 16: St. Louis Area Business Health Coalition Annual Meeting. Keynote.
• November 29: WNPR radio interview for broadcast in early December.
• December 6-8, New Orleans: National Integration Academy Council meeting (project of AHRQ). See post here.
• December 9, Buffalo: Private event.
• December 11, 4 pm (Sunday): WNPR Conversations on Health Care (Twitter @CHCRadio).Radio interview
• December 15, Washington:
  • Aspen Institute health innovation team – private meeting
  • ONC advisory panel meeting.
• December 16, Cambridge: Patients Like Me journal club. Lunch address.

2012

• January 13-14, Buffalo: Two special events with P2 Collaborative of Western New York.
• January 17, Cambridge: MIT Media Lab – Health and Wellness Innovation Workshop. Mentor.
• January 23-24, Birmingham: MedSeek Consulting.
• January 26, Washington: Medicare Innovation Summit. Attending.

• January 27, New York: e-Patient Boot Camp #002, Manhattan! Register here.
• February 2, Washington: Military Health System annual conference. Plenary panel on patient engagement.

• February 3, San Francisco: The Leadership Institute. Private keynote.
• February 9-10, Charleston: Nursing and Physician Leadership Congress. Opening keynote.
• February 18-24, Las Vegas: HIMSS annual conference. Guest of the Dutch delegation and of MedSeek.
  • 2/19: addressing the Dutch delegation: “Bridging the Gap between IT and Participatory Health”
  • 2/21 & 22: speaking at booth 1345, SPM corporate member MedSeek – 3:30-4:00
  • 2/22: Lunch meet-up of SPM members at MedSeek booth, 12:30
  • 2/23: eCollaboration Forum, 1 pm: Venetian hotel, Casanova 502. Panel.
• March 5, Orlando: e-Patient Boot Camp #003, for attendees at Florida Health Care Coalition’s “(R)evolution” the next day
• March 6-7, Orlando: Florida Health Care Coalition annual meeting, “The Healthcare (R)evolution: Best Practices in Patient Engagement.” Keynote; event advisor.
• March 10, San Diego: AMGA (American Medical Group Association) Annual Conference. Closing plenary.
• March 15-16, Buffalo: P2 Collaborative of Western NY. Annual meeting. Keynote.
• March 19, New York: Private event.
• March 21, 1 p.m. ET: National Patient Safety Foundation webcast
• March 27-31, Lucerne, Switzerland: Four events with IKF

• April 1-2, Maastricht, Netherlands: TEDx Maastricht 2012. Not speaking – participating.

• April 3, Nijmegen, Netherlands: e-Patient “question & answer evening,” similar to last year’s.

• April 10-13, Washington DC: TEDMED. Patient Representative.

• April 16:
  • Boston Marathon – my daughter’s running for the first time!
  • New York: private event.
• April 19-20, Buffalo: P2 Collaborative of Western NY – work session and videotaping.
• April 21, Toronto: Kidney Cancer Canada. Keynote.

• April 24,
  • Houston: Methodist Hospital. Keynote.
  • eHI Webinar, 2:00 – 3:00 pm ET, Presenter.
• April 28, Oporto, Portugal: TEDx O’Porto.

• May 1, Madison: The Alliance annual seminar: “Getting to E: the e-Patient of the Future.” Opening keynote.
• May 3, online: ONC data quality webinar, 12:00 – 1:30 pm ET. Speaker.
• May 3-4, Greenville, SC: Greenville Hospital, opening a new medical school in the fall. Speaker.
• May 8, La Vista, NE: Nebraska Healthcare Quality Forum (hosted by CIMRO of Nebraska).Keynote.
• May 9, San Mateo, CA: Oracle Health Sciences Innovation Forum. Speaker.
• May 14-15, Buffalo: Rich Products Annual Health Fair. Keynote.
• May 17,
  • Maine Health: Jack Wennberg and e-Patient Dave Talk Shared Decision Making.Informal live conversation.
  • DC: Kanter Learning Health System Summit. Speaker.
• May18-20, Cambridge, MA: O’Reilly Media Health FOO Camp. Participant.
• May 23, St. Louis: SSM Healthcare Leadership Conference. Keynote.
• June 4:
  • Washington: The Walking Gallery meetup (Kaiser Permanente Total Health Center, Union Station). Participant.
  • DC: Private Event. Participant.
• June 5, Chicago: ASCO (oncology) convention. Panelist.
• June 5-6:
  • Washington: ONC’s Health Data Palooza III. Participant.
  • Washington: ONC’s Health Data Palooza III – 5:00 pm Happy Hour. Moderator.
• June 7, DC: Expert Roundtable: Patient Engagement in Cancer Care. Participant.
• June 7-10, Cambridge: 40th Reunion!
• June 13, Brooklyn Park, MN: Minnesota TIGER Nursing Collaborative: Engaging Consumers in Using Health Information Technology (HIT). Keynote.
• June 19-20, DC: National Integration Academy Council (NIAC) meeting (project of AHRQ). Participant.
• June 21-July 6: Vacation
• July 12, Chicago: The Leader’s Board Roundtable. Discussion Leader.
• July 22-26, Salt Lake City: Tribal Best Practices Conference. Keynote.
• July 28-31, Rancho Palos Verdes, CA: American Board of Internal Medicine Foundation Forum. Patient Participant.
• August 3, Salt Lake City: Assoc. for Utah Community Health (AUCH) Annual Conference. Keynote, via Skype.
• August 14-15, Cambridge: National Quality Colloquium, Harvard.
  • Chairing half day mini-summit on patient engagement
  • My talk: “What if Duane Smith Had a Shared Care Plan? Engaging Families in Safer Care.”
• August 16, Buffalo: Aligning Forces for Quality “Partnering with Patients.” Keynote.
• August 19-21, Orlando: VeHU (Veterans eHealth University) web seminar day. Presenter 9/21
• August 28, Columbus: Aspen Institute Health Innovation Project. Public forum to discuss paper published last spring. (Co-author; panelist)
• Sept. 6, So. Central PA: Aligning Forces for Quality “Partnering with Patients.” Keynote.
• Sept. 11, Seattle, WA: Puget Sound Health Alliance “Your Voice Matters.” Keynote.
• Sept. 13, Boston: Leadership Institute. Keynote.
• Sept. 14, DC: PCORI Patient Engagement Working Group face-to-face meeting.

• Sept. 15-16, Boston: Medicine 2.0 Congress. Advisory board; closing keynote.
• Sept. 17-18, Maine: Athena Health “MDP” (More Disruption, Please!) Attending.
• Sept. 19, Manchester, Maine: Manchester, Maine: Aligning Forces for Quality “Partnering with Patients.” Keynote
  • Sept 20: Good Day Maine TV interview
• Sept. 21-23, Kansas City:
  • Sept 21, Kansas City: Aligning Forces for Quality “Partnering with Patients.”Keynote.
  • Sept 21-23, Kansas City: A new conference, to be hosted by Cerner: Regina Holliday’s“Partnership With Patients.” Speaking.
• Sept. 23, Arlington, VA: Diabetes Innovation 2012. Panelist.
• Sept. 26-28, Michigan:
  • Sept. 26, Grand Rapids: Aligning Forces for Quality “Partnering with Patients.”Keynote.
  • Sept. 27, Detroit: Aligning Forces for Quality “Partnering with Patients.” Keynote.
  • Sept. 28, Lansing: Cooper and Partners Worksite Wellness conference. Keynote.
• October 4-5, Las Vegas: Dignity Health. Keynote.
• October 7, Mayo Clinic: Midwest Medical Librarians Association. Keynote.
• October 8, Mayo Clinic: Patient Grand Rounds. Speaking.
• October 9, Portsmouth, NH: Disruptivate – my first keynote in the high tech / disruption space. Via GoToMeeting.
• October 9-10, Buffalo: P2 Collaborative of Western NY. Annual meeting. Keynote; moderator of day 2, with Lygeia Ricciardi.
• October 11, DC: Robert Wood Johnson Foundation OpenNotes forum. Discussant.
• October 12, Clinton, NY: Faxton St. Luke’s Campaign for Quality (Hamilton College). Keynote.
• October 19, Bangor, ME: PCMH Pilot Learning Session. Featured Speaker.
• October 24-25, Princeton NJ: Robert Wood Johnson Foundation’s 40th Anniversary.Panelist on new tools for patient decision making.
• October 26, Boston: Connected Health. Panel participant for Society for Participatory Medicine.
• October 29, Amsterdam:KPN Summit. Keynote.

• November 6, Europe:Private event

• November 8, Hamburg, Germany, 11th Annual Partnerships in Clinical Trials (conference).Keynote.
• November 13, San Francisco: Hospital Council of Northern and Central California’s Patient Safety First Exchange. Keynote
• November 15, Twin Cities: U of Minn. Consumer Engagement in Health IT. Speaker.
• November 19-20, Boston: PCORI Board Meeting.
• December 6, mHealth Zone Radio Show (12:00 – 12:30 pm EST; I’m on at 12:20)Guest.
• December 12, DC: AMIA Invitational.Attending.
• December 13-14, DC: National Integration Academy Council (NIAC) meeting (project of AHRQ). Participant.

2013

• January 8, New Jersey: Private meeting.
• January 9, Derby CT: Planetree headquarters.
• January 10, Middletown CT: Community Health Center.
• January 16: Maine Health working group (by teleconference)
• January 24, Humboldt, CA: Aligning Forces for Quality “Partnering with Patients.”Keynote.
• January 29, Columbus, OH: Health Action Council of Ohio annual meeting. Keynote.
• January 30-Feb 1, Cambridge MA: MIT Media Lab Health & Wellness Innovation Workshop.Observer.
• February 6-8, Twin Cities: patient engagement work sessions with three groups
• February 15-16, Boise, ID: St. Luke’s Health System Summit. Closing keynote; staff workshop.
• February 18-19, Buffalo, NY: Special Media Event – to be announced.
• February 21-24: Private retreat.
• February 25-27, Washington:
  • 25-26: Institute of Medicine – patient engagement
  • 27: PCORI social media strategy meeting
• February 27, Washington: Private meeting.
• March 3-6, New Orleans: HIMSS 13 Conference
  • Sunday morning: Holland House, Sheraton – speech (private event)
  • Monday, 4pm: Interoperability Showcase Theater – featured speaker
  • Tuesday, 1-5:30: “Docent” tour guide in interop showcase
• March 7, Napa: California Society for Hospital Risk Management. Keynote speaker.
• March 12, Las Vegas: Dignity Health Patient Engagement Summit.
• March 19, Billings, MT: 2nd Annual Regional Telehealth Conference. Keynote.
• March 21-29, Lucerne, Switzerland:Institute for Communication & Leadership. Meetings, lecture Saturday.
• April 4, Brookline, MA: Harvard Medical School – “eHealth From the Patient’s Perspective.” Lecture in Charlie Safran’s course.
• April 6-8, Holland: TEDx Nijmegen – “The Future of Health” – “fire talk” at end of conference
• April 10-12, Saskatchewan, Canada: Health Quality Council – 2nd Annual Quality Summit. Keynote.
• April 15, Philadelphia: Wharton School of Business. MBA lecture on eHealth, with John Glaser.
• April 17-21, London: BMJ / IHI Quality & Safety in Healthcare 2013.Keynote.
• April 25, Dearborn: Michigan Hospital Association Patient Safety and Quality Symposium. Keynote.
• April 26, East Lansing: Michigan Healthcare Human Resources Association. Keynote.
• May 8, Cambridge, MA (Harvard Faculty Club): Health Policy Seminar for Hematologists.Guest Speaker.
• May 9-10, Kingston, Ontario: KGH Connect, 2013 Knowledge Exchange Conference – Transforming the patient experience. Keynote.
• May 15, Cary, NC: SAS Institute. Health Analytics: From Big Insights to Big Breakthroughs. Keynote.
• May 17, Huntington Beach, CA: St. Joseph Health. Keynote.
• May 17-19, San Francisco: Conference for Global Transformation. Participant.
• May 22: Patient Engagement Webinar. Speaker.
• June 3, Long Beach: 2013 PFCC Conference. Keynote.
• June 11, Virtual Conference: Modern Healthcare. Speaker.
• June 13, Iowa: Iowa Hospital Association. Keynote.
• June 20, Maine: Maine Hospital Association. Keynote.
• July 10-11, National Integration Academy Council (NIAC). Virtual Participant.
• July 25, online: Private webinar.
• August 3-6, Vancouver BC: ABIM Foundation Forum. Participant.
• August 14, Rhode Island: Rhode Island Quality Institute. Keynote.
• August 15, Rhode Island: National Council of State Boards of Nursing. Keynote.
• August 16, Minneapolis-St. Paul: LSS Data Systems (a wholly owned subsidiary of Meditech)Practice Management Forum. Keynote.
• August 22, Wichita: Kansas Hospital Association. Keynote.
• Sept. 4, New Bern, NC: 5th Annual Eastern Regional Patient Safety and Quality Symposium co-sponsored by Vidant Health and Carolina East Health System, Private Event.Keynote.
• Sept. 11-12, Bretton Woods, NH: Orion Health 2013 North American Healthcare Collaborative (open to Orion Health clients only). Keynote.
• Sept. 13, Cambridge MA: Healthcare of the Future Colloquium. Participant.
• Sept. 16, Washington DC: HHS Consumer Health IT Summit.Opening keynote.
• Sept. 17, Hartford: CT Partners for Health (Qualidigm) – Better Health: Everyone’s Responsibility. Keynote.
• Sept. 18, Toronto: Trillium Health Partners. Keynote.
• Sept. 19-20, Cincinnati: Schulman Associates HSP Conference. Keynote with two related sponsored visits.
• Sept. 25, private webinar.
• Sept. 27-29, Palo Alto: Medicine X, Stanford Speaker and moderator.
• Sept. 29-Oct. 1, Santa Clara: Health 2.0.Role TBD.
• Oct 3, Boston: NEHI Innovation Conference.Opening keynote
• Oct. 4, Montreal: World Parkinson Congress. Keynote.
• Oct. 9, Washington, D.C.: Private event. Keynote.
• Oct. 11, Pennsylvania: Hospital & Healthcare Association of Pennsylvania. Keynote.
• Oct. 15, Birmingham MI: National Kidney Foundation of Michigan Keynote.
• Oct. 16-17, Washington, D.C.: Partnership For Quality Care. Keynote.
• Oct. 18-20, Portland, ME: Personal – chorus competition
• Oct. 24, Minnesota: Mayo Clinic Social Media Residency. Participant; possible faculty.
• Oct. 25, Nebraska: Nebraska Hospital Association. Keynote.
• Oct. 26, Boston: SPM Board
• Oct. 31, Boston: Harvard Clinical Informatics Course. Guest lecturer.
• Nov. 1, Tennessee: Tennessee Hospital Association. Keynote.
• Nov. 2-11: “Let Patients Help” Euro Tour 2013
  • Budapest, Nov. 5: Lecture in @Berci’s course at Semelweiss University
  • Athens, Nov. 8-9: Patients In Power conference.
  • Tour continues Nov. 22-25
• Nov. 14, San Antonio, TX: Experian Healthcare. Keynote
• Nov. 17, Washington DC: American Medical Informatics Association annual conference.Opening keynote.
• Nov. 22-25: “Let Patients Help” Euro Tour 2013, continued
  • Nov. 22, Amsterdam: Vintura Annual Life Sciences Event – “Patient Centricity and Engagement.” Keynote and panel.
  • Nov. 25, Belgium: government event.
• Dec. 2, Washington: RWJF Price Transparency Conference. Panelist.
• Dec. 6, California: Dr. Orme Annual Symposium. Speaker.
• Dec. 8-11, Orlando: IHI National Forum. Participant.

Past Events – 2014

• Jan. 15, San Antonio: A2E Annual Conference. Keynote.
• Jan. 16, Virtual Conference: Heartland Kidney Network. Speaker.
• Jan. 20: London. British Medical Journal Partnering with Patients project. Patient Advisor.
• Jan. 27, Kansas City, MO: Saint Luke’s Mid America Heart Institute: PCORI Decision Aid project meeting. Participant.
• Feb. 13-14, D.C.: National Quality Forum Annual Conference. Participant.
• Feb. 19, D.C: The Brookings Institution.Panelist.
• Feb 22, Modesto: Cardiac Symposium – Cardiovascular Update for the Practitioner. Keynote.
• Feb. 23-25, Orlando: HIMSS 14
  • 2/23: Consumer and Patient Engagement Symposium. Keynote and closing remarks.
  • 2/24: Interoperability Showcase. Opening speech (30 min).
  • 2/24: Orion Health “Lunch & Learn” – room 321B.
• Feb. 27-28, Canada: Quality Forum 2014: Inspire. Collaborate. Act, BC Patient Safety & Quality Council. Keynote.
• March 6-9, New Orleans: American Medical Student Association National Convention.Keynote.
• March 14, Massachusetts: DF/HCC Kidney Cancer Survivor Symposium. Attendee.
• March 17, Philadelphia: Wharton School of Business. MBA lecture on eHealth, in John Glaser’s class.
• March 20, Webinar: Krames StayWell. Speaker.
• March 28-30, Fort Worth: High Reliability Organizations. Panelist.
• April 4, D.C.: National Board of Medical Examiners, 100th Annual Meeting. Keynote.
• April 7-8, D.C.: National Quality Forum: Person Centered Care Outcome Measures. Participant.
• April 10-11, Virginia: 2014 VHREF Spring Conference. Keynote.
• April 17-18, Philadelphia: National Board of Medical Examiners task force meeting on Patient-Centered Assessment. Participant.
• April 26-27, Santa Monica: Dignity Health, private event. Keynote.
• May 1-2, San Francisco: Healthcare Informatics Executive Summit by Vendome Healthcare Media. Keynote.
• May 14, Cambridge, MA (Harvard Faculty Club): Health Policy Seminar for Hematologists. Guest speaker.
• May 15-18, San Francisco: Conference for Global Transformation. Participant.
• May 19, Phoenix: Arizona Hospital & Healthcare Association Care Improvement Symposium. Keynote.
• May 28, Dartmouth: New event! TDI Seminar Series at The Dartmouth Institute for Health Policy & Clinical Practice. Academic seminar: presentation followed by debate and discussion.
• June 2-4, Mississippi: University of Mississippi Medical Center. Speaking.
• June 5, Point Clear, AL: 
  Mississippi Health Association. Keynote.
• June 7-14, Switzerland: IKF’s annual Swiss tour. Multiple keynotes and private meetings; launch of the German edition of “Let Patients Help.” 
• June 17-18, Nashville: American Academy of Nurse Practitioners. Keynote.
• June 20, Elkhart Lake, WI: Wisconsin Hospital Association Rural Health Conference.Keynote.
• June 24, Iowa: Telligen (Iowa REC and Quality Improvement Organization). Keynote.
• June 26-27, New Hampshire: Dartmouth Summer Institute for Informed Patient Choice.Speaker.
• July 7-8, Victoria, British Columbia: Vancouver Island Health. Keynote and Board Workshop.
• July 13-19, Boothbay Harbor, Maine: vacation and talk on July 17: Boothbay Health & Wellness Foundation “Third Thursday” forum. Guest speaker.
• July 23, Providence, R.I.: Patient Centered Medical Home conference, sponsored by NCQA and Rhode Island Quality Institute. Keynote.
• August 11-14, Melbourne, Australia:
  • August 11: Participatory Health Conference 2014. Keynote and discussion panel.
  • August 12: Health Informatics Conference. Keynote, with Dr. Danny Sands
• August 25-26, Stockholm: Digital Health Days. Keynote.
• August 27, Stockholm: Let Patients Help! – in healthcare and research” – half day workshop with researchers at Karolinska Institutet. Sold out – see event details on EventBrite page.
• September 3-4, Washington: National Integration Academy Council meeting (project of AHRQ).
• September 9, Burlington, Vermont: Vermont Information Technology Leaders (VITL) Summit. Keynote.
• September 17, Nashville: HIMSS Summit of the Southeast. Keynote and workshop!
• September 18, Europe: special event – to be announced
• September 24, Seattle, WA: Seattle Rotary. Speaker – largest Rotary Club in the world.
• September 25, Billings MT: Montana Hospital Association Annual Meeting. Keynote.
• September 27: ESMO european cancer conference – session co-leader.
• October 9, Arkansas: Arkansas Hospital Association Annual Meeting. Keynote.
• October 15, Philippines (via video): The 2014 Bernardino Agustin Lecture, Philippine Society of Medical Oncology
• October 18, DC: American Academy of Nursing Annual Conference. Panel.
• October 20, DC: Community Health Workers: Getting The Job Done in Healthcare Delivery. Workshop conducted by NEHI.
• October 21-23: Mayo Clinical Center for Social Media Summit. Participant.
• October 29, Twitter: #QualityChat tweetchat, with British Columbia Patient Safety & Quality Council (noon Boston time)
• November 1, Kansas City: Cerner Physician Community Meeting. Keynote.
• November 2-3, Los Angeles: Healthcare IT Summit produced by The Channel Company. Opening keynote.
• November 8, Chicago: Association of American Medical Colleges annual meeting. Thought Leader session.
• November 9-11, San Diego: Exponential Medicine (formerly FutureMed). Workshop and speech (with surprise)
• November 12: Charlotte, NC. North Carolina / South Carolina Rural Hospital Association. Sponsored by the Duke Endowment.
• November 24, via webcast: Irish Platform for Patients’ Organisations, Science and Industry (IPPOSI). Web chat.
• December 8 & 9, Providence, RI: Brown University’s Executive Master of Healthcare Leadership. Speaker.
• December 16-17, Bethesda: National Integration Academy Council (NIAC) meeting (project of AHRQ). Participant.

Past Events – 2015

• January 7, London: BMJ patient panel meeting
• January 29, Miami: Private corporate event.
• February 9, Washington D.C: DNV GL and Sustainia roundtable on the Future of Healthcare in the US. Participant.
• February 23, Philadelphia: Wharton School of Business. MBA lecture on eHealth, with John Glaser.
• February 26, Las Vegas: Private event: Keynote.
• March 6, Vermont: Private event
• March 9, Orlando: InterSystems Healthcare Leadership Conference. Keynote.
• March 18-19, Augusta, ME: Maine Quality Counts
  • 18: Healthcare Town Meeting
  • 19: Patient Provider Partnership Learning Session. Keynote.
• March 19, Boothbay Harbor, ME: Boothbay Region Health Center Community Evening. Speaking, participating
• March 23-25: Mayo Clinic – Visiting Professorship in Internal Medicine. Announcementhere.
• March 26 Video Conference: Johns Hopkins School of Medicine. Lecture.
• March 29 – April 4, Switzerland: Ufficio del Medico Cantonale – Sanita Elettronica e Oltre, “e-Health & Beyond”. Keynote.
• April 12-13, Chicago: HIMSS15; InterSystems
  • 12: Private Event: 7:00pm-10:00pm Shedd Aquarium
  • 13: Book Signing: InterSystems booth 961 1:00-3:30pm
• April 18, Newark: International Kidney Cancer Coalition. Keynote and panelist.
• April 23, Toronto: Society for General Internal Medicine Annual Meeting. Panelist.
• April 30-May 1, DC: GetWell Network. Roundtable.
• May 7, Toronto:
  • MaRS HealthKick. TED-style talk on innovation.
  • Health Technology Forum: evening chat.
• May 8, Massachusetts: BIDMC/DF/HCC Kidney Cancer Survivor Symposium. Attendee.
• May 12-13, Bethesda: National Integration Academy Council (NIAC) meeting (project of AHRQ). Participant.
• May 15-17, San Francisco: Conference for Global Transformation. Workshop leader.
• May 27, DC: NEHI Advancing Value in Oncology: Opportunities and Challenges for Innovation.Speaker.
• May 28, DC: ANA Healthly Nurse Grand Challenge. Participant.
• June 1, Toronto: eHealth Conference: InterSystems. Speaker & book signing.
• June 2, New Hampshire: Private event. Speaker.
• June 4-6, Grantsville, Maryland: Regina Holliday’s “Cinderblocks” event
• June 7-13, Lucerne, Switzerland: IKF’s annual Swiss tour. Multiple keynotes and private meetings.
• June 16-17, Chicago: National Healthcare Innovation Summit.  Attending.
• June 17, London (via web): The King’s Fund, Digital Health Days Congress. Speaker.
• June 26, Webcast: Rebels At Work, Corporate Rebels United and Change Agent Worldwide,Rebel Jam. Speaker.
• June 29, London: Private event.
• July 17, Boston area: Private corporate event
• July 22, 1 pm ET, web: Phreesia webinar (free registration): Let Patients Help – 45 minutes + 30 minutes Q&A
• August 13-14 D.C.: RWJF National Leader Summit on Integration of Behavioral Health & Primary Care. Participant.
• August 30-Sept. 02, Nijmegen, Netherlands:
  • REshape Hacking Health 2015 hackathon. Judge
  • “Grand Inaugural Rounds” at RadboudUMC Medical School. Speaker
• September 10, Lancaster PA: Hospital & Healthsystem Association of Pennsylvania, 2015 Patient Safety & Quality Symposium. Keynote.
• September 11-19, Alaska: multiple events in Anchorage and Soldotna.
• September 23-27, Palo Alto: Medicine X. Speaker at Medical Education event.
• October 1, Webinar: Experience Innovation Network. Speaker.
• October 5, Toronto: Bayshore Healthcare 2015 Leadership Conference. Keynote speaker.
• October 7, online: HealthSparq webinar. Participant; details TBA.
• October 12, New York: Medicine X Pop-Up event. Free – join us all!
• October 20, PA: Private Event. Keynote. 
• October 28, mid-Atlantic: Private Event. Keynote.
• October 29, Wallingford, CT: Connecticut Hospital Association 2015 Nurse Leadership Forum.  Keynote.
• October 29, Boston: Connected Health Symposium. SPM member reception Thursday night.
• November 5, D.C.: American Psychological Association Presidential Innovation Summit. Closing keynote.
• November 10, Sacramento:
  • CalOHIII Transforming Healthcare Summit 2015. Keynote.
  • Health 2.0 Sacramento meetup. Featured speaker.
• November 24, via Skype: @Berci’s meetup in Budapest: Let’s Create Digital Healthcare!Featured speaker.
• November 30, midwest: Private event.
• December 2, Texas: Texas Hospital Association. Keynote.
• December 3, Texas: LaVerne Gallman Distinguished Lectureship in Nursing at University of Texas School of Nursing.
• December 14, Keene, NH: Antioch University New England. Guest Lecture.

My Second Career –
from High Tech Marketing to Healthcare Evangelist 

Latest additions are at the Blog Posts heading below.
_______

Having survived a medical “death sentence” with the help of brilliant clinicians and treatments, I’m passionate about healthcare – its problems and its potential. Combining that with my experience as a business analyst and conference presenter, I’ve become an avid speaker on all aspects of healthcare transformation, consumerism, digital health (internet-driven “Health 2.0”) and patient experience and engagement. Below are recordings of some of the talks I’ve delivered. From different angles, each weaves in participatory medicine, high-tech thinking in healthcare, social media, patient engagement – and the joy of being alive.

TED Talk: “Let Patients Help”

Over 700,000 subtitles in 27 languages.

Thanks to all the Dutch visionaries who created this extraordinary TEDx Maastricht event on the future of health, especially the team of Lucien Engelen, who had the vision to make a patient the first speaker named, when the event was first announced.  He saw what others are seeing today – the chant at the end of the video: Let Patients Help heal healthcare!

Index of archived presentations

The new era: empowerment and autonomy through AI

Eleven years after that TED Talk, in 2022 generative AI arrived on the scene and changed everything. (I don’t think that’s an overstatement, do you?) Meanwhile, the world has continued to learn how empowerment works. Two recent talks:

• Returning to the scene of that TED Talk, Maastricht, half a generation later: “Empowerment happens by removing constraints” (May 2024, 19 minutes +Q&A).
• “The Dawn of Patient Autonomy” – opening keynote at Frontier Health, Berlin, October 2024

Blog posts with videos:

• • NEHIMSS 2019: teaching Patient-Clinical Partnership with role play – and a song, with Dr. Danny Sands (June 2019)
  • HL7 FHIR DevDays 2018: From ‘Let Patients Help’ to ‘Get Out of My Way’: why some patients want ALL their data now, (Nov. 2018)
  • Informal interview with @Chimoose (Greg Matthews) about the business value of the patient’s voice, Oct. 2014 (posted January)
  • From MedicineX 2013: Social Media is a Pipeline of Patient Needs and Perspectives (18 minutes)
  • Digital Health Days, Stockholm (“the Land of Nobel”) (August 2014):
    • 20 Minute Opening Keynote, tying our movement to the history of the Nobel Prize in Medicine
    • 9 minute hallway interview – my views on additional topics at the event, especially Quantified Self, Susannah Fox’s findings on Twitter vs Facebook
    • The closing panel (50 minutes total)
      • My first four minutes start at 18:30, about SPM and Regina Holliday’s story via my “Walking Gallery” jacket
      • Another five minutes start at 33:07, about the potential and the limits of “Gimme My Damn Data”
    • “Dagens Patient” workshop at Karolinska Institute (30 minutes)
  • My Call to Action at the Blue Button Plus Developer Conference, NY (event was July 2013, video was released Feb 2014)
  • AMIA Keynote (standing ovation), Nov. 2013
  • One of my best speeches in years: Keynote Presentation at NEHI’s 2013 Innovation Conference: Patient Engagement 360
  • National Council of State Boards of Nursing, August 2013 (47 minutes)
  • ONC Consumer health IT event, Sept 2013 (14 minutes)
  • SAS Institute, May 2013 (56 minutes)
  • “My Health Counts: e-Patients” (WNED-TV program, 27 minutes; my part’s about 12 minutes)
  • “I want the best to thrive” – keynote to hospital boards and executives, St. Luke’s, Boise ID, Feb 2013 (65 minutes)
  • “Information at the point where it’s needed can save a life” – Joseph H. Kanter Family Foundation (36 minute dinner speech)

• High Tech: “The Quantified Patient” (The Quantified Self, December 2009; 14:43)

• Academic / Medical:
  • Doctors and Patients on the Same Page: Welcome to the Age of Participatory Medicine/Open General Session: SIIM (Society for Imaging Informatics in Medicine) (June 2018)
  • “How Engaged e-Patients are Improving Balance in the Patient-Provider Relationship” (Plenary address at Ninth Quality Colloquium, Harvard, August 2010; 30:12)
  • “Gimme My Damn Data” (Opening keynote at Medicine 2.0 Congress, September 2009; 40:00)
  • “How Patient-Provider Engagement Can Transform Healthcare” with Dr. Danny Sands (Special Interest Keynote session A1 at IHI Forum, December 2010; 73:13

• Business / Social Media:
  • “Are You Ready for the e-Patient?” (Swedish Medical Center, October 2010)
  • “Engage Authentically” (e-Patient Connections, October 2009; 17:50)

• Policy / Health IT:
  • “Give Us Our Data” (NeHC board meeting, June 2009; 24:06)
  • “Over My Dead Body” (AHRQ IT contractors, June 2010; 1 hour)

• Impromptu interviews:
  • Reach MD at Alliance for Continuing Education in the Healthcare Professions in Orlando, Florida, Nov. 2017
  • Podcast about clinical trials: Clinical Trials Guru (Sept 2010; 25:59)
  • Dr. Anonymous interview at HIMSS conference (health IT), Atlanta, March 2010

High Tech

Quantified Self, at Wired headquarters: “The Quantified Patient”
December 7, 2009, San Francisco.

“Quantified Self” is an eclectic group that could only exist in the Bay Area – infogeeks who are into measuring just about any aspect of their lives. QS evenings consist of an hour of elbow-rubbing then a series of short, rapid-fire talks; there’s no time to get bored, and you have to get to the point. The challenge here was to deliver a 45 minute talk in 15 minutes, covering all the bases coherently without the usual depth.
Back to top

Business / Social Media

1. Swedish Medical Center: “Are You Ready for the e-Patient?”
October 2010, Seattle.

Swedish, as it’s known, is not known enough. An innovative center of excellence for many years, Swedish celebrated its 100th birthday with a two day conference – and befitting their leadership, they started with a half day social media conference. Earlier in the year, Communications Director Melissa Tizon scored a coup by snapping up social media goddess Dana M. Lewis. Together they put together a terrific line-up of social media stars, talking about all aspects of social media in healthcare. They asked me open the day, challenging employees and visitors to ask whether they’re ready to make the most of working with today’s engaged patients.

(A confession: on this speech I muffed the ending. As you’ll see, uncharacteristically for Seattle, the sun came out and shone straight in my eyes. I usually want a more powerful ending. This one ended where it ended. :–))

2. e-Patient Connections 2009: “Authentic Value: Being Known in e-Patient Communities.”
October 2009, Philadelphia.

The setting was a pharma industry marketing conference, the first to be focused on how industry can engage with activated patients, both to empower patients to have a more active role in their care and, in exchange, so vendors can leverage the sometimes enormous contributions patients can make to the industry’s knowledge. The challenge, of course, is that due to many stories of manipulated data etc etc, many engaged patients don’t trust pharma. I drew on my experience in business and in social media to deliver my message: Engage Authentically.

Back to top

Policy / Health IT

1. National eHealth Collaborative board meeting: “Give Us Our Data
June 24, 2009, Washington.
NeHC is an inspiring collaboration of non-profits in Washington devoted to improving healthcare through technology. This meeting occurred during the pivotal summer discussions about defining the “meaningful use” of health IT that’s required in order to qualify for the incentive payments offered in the ARRA/HITECH stimulus bill of 2009. I was invited to speak on the vital issue of giving patients access to their data.

This was an impromptu talk, which I put together while listening to the previous speakers. It’s an informal recording, not including my slides; it shows my speaking style but not my use of visual aids.

Back to top

2. Keynote to AHRQ’s IT Grantees and Contractors
June 10, 2010

This was the first time I was given a full hour to go deep into my points – not just touch relatively lightly on patient engagement, but dig into why it matters.  The depth matters – that’s why I developed the e-Patient Boot Camp – a full-day workshop. Thank you to Jon White at AHRQ for his partnership both in making this possible and in discussing what would be of value to this audience.

Click below to play the slides. For audio and video, click to download this tiny file, which plays it on AHRQ’s archive. Updated 8/22/15.

About AHRQ: The Agency for Healthcare Research & Quality is a terrific Federal agency that administers grants and contracts for health-related projects, including health IT. This was a high quality audience of smart people who manage significant projects.

About the title: Just before this meeting a rumor was circulating that an executive at a medical records company had said “Over my dead body.” The exec was referring to the idea that these systems would be required to be usable by the clinicians who care for us. I was aghast; a December lecture by Ross Koppel had detailed how bad some of the systems were, and believe me, if hospital staff are caring for my loved one, I want them to have a good system, not one that screws up as badly as Koppel describes. So I threw that line in the industry’s face, using it as my title – and connecting it to why this matters to patients.

We must, must, must stop thinking about systems primarily in technicians’ terms. We must remember that the purpose of healthcare is to deliver care, and tools must support the workers who do that.

Back to top

Academic / Medical

1. “How Engaged e-Patients are Improving Balance in the Patient-Provider Relationship”
(Plenary address at Ninth Quality Colloqium, Harvard, August 2010) Click to visit the video, with slides, on their site. Thanks to the conference for making this video free to the public!

Back to top

2. Opening keynote at Medicine 2.0 Congress: “Gimme My Damn Data”
September 17, 2009, Toronto.

Medicine 2.0 is an academic congress, the only event I’ve attended where every single session was of interest to me in helping learn how Web 2.0 is changing healthcare by newly empowering everyone – not just patients but physicians and researchers. I was humbled to be invited by Dr. Gunther Eysenbach to deliver the opening keynote.

In this expanded 40 minute format I was able to cover not just the cancer story but a broader review of what “e-patient” is about, the opportunity to transform healthcare through participatory medicine and through IT, and the sorry state of affairs we face today regarding patients’ access to their data. (Whose data is it, anyway?) Gimme my damn data, so I can help! The opening slide says September 18 – I got the date wrong!

Part 1:

Part 2:

Part 3:

Part 4:

3. Special interest keynote at Institute for Health Improvement’s 2010 Forum: “How Patient-Provider Engagement Can Transform Healthcare”
December 4, 2010, Orlando.

The Institute for Healthcare Improvement may be the best organization anywhere in the work they do to change the world of healthcare. This year at their annual Forum in Orlando, they did two extraordinary patient-oriented things: they invited fifty patients to attend at no cost, and they put a patient story at the top of the agenda, right after the opening keynote by IHI president Maureen Bisognano.

Dr. Danny Sands and I told our story from both physician and patient perspectives. Thanks to the Institute for Healthcare Improvement for making this video freely available to the public!

Impromptu interviews:

1. Vidcast about clinical trials: Clinical Trials Guru (Sept 2010; 25:59)

These guys are a hoot: with virtually no budget and freely admitting they’re making it up, they’re forging ahead. They do these informal interviews using Ustream, which is not intended for this sort of thing, but it does archive the video, which they can then post like this. They’re advancing their cause using freely available tools, and here we are: they’re reaching you. That’s healthcare social media – one tiny example.

Here’s their archive of past Ustream vidcasts and their clinical trials search page, which pulls from the government website ClinicalTrials.gov. For this series all they do is switch on Ustream (a free videocasting service) and get on the phone with someone. How simple is that? It’s then instantly available for publishing on the web. Here’s our informal, unrehearsed talk:

2. Impromptu interview with “Doctor Anonymous” (March 2010)

He and the famous Doctor Val, both of the Get Better Health blog, were doing scheduled interviews during the huge HIMSS health IT conference in Atlanta. A scheduled guest no-showed, so Val nabbed me in the hall and pulled me in. There was no plan, but we ended up talking about “What the heck is this e-patient stuff, anyway?? Is it about patients thinking they’re smarter than doctors??” No, it’s not – it’s about being good partners with supportive physicians. The interview worked out pretty well – now I’m a guest blogger on their blog!

Quick links:

• Dave’s TED Talk and book (both titled “Let Patients Help”)
• For speaker bio’s, jump down to here.
• For other photos see the Photos page.

Cancer survivor “e-Patient Dave” is an international keynote speaker on healthcare who consistently earns extraordinary ratings by understanding each audience and working closely with each client to define their unique “home run.” Audiences have ranged from the Institute for Healthcare Improvement to the Danish Patient Safety Association and the Israel Internet Society. His compelling TEDx Talk “Let Patients Help” was for years in the top half of most-watched TED talks of all time.

Standard Topics:

• Patient Engagement / Patient Empowerment / Patient Experience
  • Let Patients Help Heal Healthcare  (book: Let Patients Help: A Patient Engagement Handbook with Dr. Danny Sands; introduction by Eric Topol MD)
• Superpatients: Patients who extend science when all other options are gone
• Healthcare Consumerism: a businessman’s view of the consumer side of healthcare (I published an RFP to shop for skin cancer treatments!)
• Inspiration / Motivation / Attitude / Mind Power
  • Dave’s first cancer book: “Laugh, Sing, and Eat Like a Pig: How an Empowered Patient Beat Stage IV Cancer (and what healthcare can learn from it)”
• Facing Death (book: Facing Death – With Hope)

See videos of past talks, testimonials, and list of past engagements.

————————

Dave’s Story

“e-Patient Dave” deBronkart was diagnosed in January 2007 with Stage IV, Grade 4 renal cell carcinoma (kidney cancer) at a very late stage. His median survival at diagnosis was just 24 weeks; with tumors in both lungs, several bones, and muscle tissue, his prognosis was “grim,” as one web site described it.

He received great treatment at Boston’s Beth Israel Deaconess Medical Center: his surgeon removed the extensive mess (laparoscopically!), and the Biologic Therapy program helped him participate in a clinical trial for the powerful but severe High Dosage Interleukin-2 (HDIL-2). His last treatment was July 23, 2007, and by September it was clear he’d beaten the disease. His remaining lesions continued to shrink for years after the treatment ended.

Today: Advocate and Activist

An accomplished speaker and writer in his professional life before his illness, today Dave is actively engaged in opening health care information directly to patients on an unprecedented level, thus creating a new dynamic in how information is delivered, accessed and used by the patient. This is revolutionizing the relationship between patient and health care providers, which in turn will impact insurance, careers/jobs, quality of life and the distribution of finances across the entire spectrum of health care.

“What’s an e-Patient?”

A year after the diagnosis Dave was invited by his primary physician, Dr. Danny Sands, to join the annual retreat of the e-Patient Scholars Working Group. Founded by the late Tom Ferguson MD, a true visionary, the group consists of pioneers, both medical and lay, who have been quietly (and not so quietly) altering the balance of power in healthcare, demonstrating that as the internet brings patients together with information and with each other, a new world of Participatory Medicine is evolving, in which patients become potent agents in creating and managing their own health, in partnership with physicians.

Tom Ferguson said e-patients are empowered, engaged, equipped and enabled. Dave immediately saw himself as a match, became an active blogger on e-patients.net, and took on educating himself as much as he could. He went part-time in his day job in 2009, and left industry entirely in 2010 to devote himself full-time to healthcare.

“This is the first time in my life I’ve felt I have a calling,” says Dave, “something I can’t get away from: it’s what I need to do. I’ve had plenty of fulfilling jobs in a great career, but not a calling. This is it.”

_____________

Bio for speaking engagements

Note to clients: In publishing conference materials, or introducing me to your audience at the event, I urge you not to focus primarily on my biographical details below; tell them why you invited me to take up their time at this event. I’m presuming there was a specific reason – that I’m not just a necessary evil to fill your agenda. So, share with your audience what called to you, and why you believe it’ll be relevant to their lives!

Having said that, you’re welcome to select from this formal bio.

Full bio, 271 words, updated 2019: