Who says the gummint can’t move fast?? Last Monday morning I gave the opening talk in Washington for the Consumer Health IT Summit, and holy cow, the video’s already been edited and is live on YouTube!
If you can’t see the video below, click the screen capture at right to view it on YouTube.
(Caution – them same gummint people live with policies that didn’t allow me to plug in my computer; we had to use theirs, which of course hasn’t been upgraded from PowerPoint 2007 yet. The contractors assured me my slides would work fine, and after a half hour of emergency surgery they mostly did, except the one where the text came out black and the slides that kept changing spontaneously – always fun for a speaker to deal with. But the message got across!)
This is really important, folks! Speak up! Get involved!
There are rules and laws and regulations that say you DO get to access your data, and it’s a Federal civil rights violation for a provider to tell you no. And it’s really good that our data will get liberated, because that means innovators can create software and gadgets to do fancy and useful things with your data. And your kids’ data. And your elders’, and your friends’.
Educate yourself – “free your mind,” as we said in the Sixties. The new era is coming – let patients help! And to do that, you gotta have copies of what your doctors see. Get involved.
Wow, inspirational talk Dave on giving clinical data to the patient.
Yes it is not just America where clinical data is not given to the patient but a problem around the world!
Data, especially electronic data is collected by physicians, hospitals, but is it ever analysed?
If the data is given to you, yes you would probably scrutinize it more than the physician/hospital would & after research would probably note any discrepancies.
But it is the patients apps that need inventing, a need to turn that electronic data into something that the patient can recognise & understand without the need to spend time “Google-ing” the information.
My aim in life is to try to see if we can make it easier for the patient to understand this clinical data no matter where you are from, which language you speak, if you are old or young.
Patient are starting to see their data, Blue Button+ is helping. Our next challenge is to now translate it into meaningful use for the patient.
> Our next challenge is to now translate it into meaningful use for the patient.
Yes!
[Jeeze, I just watched this again – that was a pretty good hit, for 4 hours of sleep and technical challenges! Jeeze. Well, that’s jazz, baby.]
Why not start that next revolution Dave!
We all know those clinical words used by the Healthcare professionals is at first a scary garbled mash-up of letters unpronounceable to most citizens, let alone both patients & Doctors speaking the same native language.
At the moment most patients go away with confusion until later they can spend time researching it what is wrong with them & the words the doctor has just used!
There are easier & simple ways to let the people of this planet know in an instant what are the possible diagnosis to a problem in a way almost all can understand and it is exploring those ideas & concepts with “Lateral thinking” which then benefits you, your children, your grand children & all generations to come.
Here is that Seinfeld clip that Dave referenced :-)
https://www.youtube.com/watch?v=ZJ2msARQsKU
And here’s a flyer I posted here 3 years ago that links to the Seinfeld clip … that flyer was created because the real HIPAA / Office For Civil Rights flyer didn’t exist yet!
I still hope OCR will change the name of that thing to “Privacy & Access Rights”!