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September 26, 2020 By e-Patient Dave Leave a Comment

“My doc’s practice closed. Need my chart. What do I do?”

That’s a paraphrase of the starting tweet in a valuable thread today from a colleague in OpenNotes, Cait DesRoches. Here are the tweets. (I hope this all comes through on the blog; email subscribers, if necessary, click the headline to read this online.)

Hey med records experts – I need a consult. My sis needs her records from an independent prac that closed. She’s tried calling. Where should she go next to escalate the request? She’s in NYC @GraceCordovano @HealthPrivacy @ePatientDave

— Cait DesRoches, DrPH (@cmd418) September 26, 2020
[Read more…]

Filed Under: FHIR, Health data Tagged With: health data, health IT, medical records, open notes, OpenNotes, patient advocates, patient empowerment Leave a Comment

July 22, 2020 By e-Patient Dave 2 Comments

America hasn’t, but Europe re-opened safely. We can catch up. Here’s how.

As a subscriber to Amazon’s Audible books, I get a really good daily digest from the Wall Street Journal: four selected articles plus an editorial. Not surprisingly, many recent articles have been about the virus, including two yesterday. The first was the usual roundup of statistics, with no holds barred on how bad it is in the US, due to stupid re-openings. The second had coverage from Europe that bears repeating: How Europe Kept Coronoavirus Cases Low Even After Reopening. Key points:

[Read more…]

Filed Under: Coronavirus 2 Comments

July 6, 2020 By e-Patient Dave 5 Comments

Zeke Emanuel: “Reopen intelligently. Reopen safely.”

Ezekiel Emanuel MD is the profane, street-wise Chicago politician widely considered (among people I trust, anyway) to be the architect of the Obamacare legislation, not least because of his ability to design it so enough anti-reform forces would let it through. Those pragmatic compromises are the source of much distress among those people I trust, because the law’s not perfect. But it is perfect in the sense that the legislation passed, and has survived all attempts by vehement opponents to cut its nuts off (so far). So when he gives advice, I believe it will be pragmatic and street-wise. And probably blunt. But winning.

Here’s his advice, last week, on what activities are relatively safe or dangerous as this country continues re-opening for better or worse.

Source: EzekielEmanuel.com
[Read more…]

Filed Under: Coronavirus Tagged With: coronavirus, covid-19, public health, reopening, zeke emanuel 5 Comments

June 26, 2020 By e-Patient Dave Leave a Comment

Olivier Karasira wins People’s Choice award at FHIR DevDays Patient Track

After last week’s FHIR DevDays conference, I blogged on Wednesday that Morgan Gleason had won the judges’ award in the Patient Innovator Track. There was another winner – for the first time we did a People’s Choice award, and it was won by Olivier Karasira, a man in Rwanda working on a remarkable project: “Turning Paper into FHIR in Africa.”

[Read more…]

Filed Under: FHIR, Health data, patient engagement Leave a Comment

June 24, 2020 By e-Patient Dave 1 Comment

Morgan Gleason, 21, wins the second FHIR DevDays Patient Track

Last week at the virtual DevDays conference (for the FHIR software standard that I’ve blogged about so much) we held the second Patient Innovator Track. Watch the winning pitch, 10 minutes long, from Morgan Gleason, fresh out of college. She describes her complex situation and how she’s learned to deal with it manually, and tells the FHIR developer community what she needs – what she wants them to help create, so she can walk into each doctor visit fully prepared without going through all the work she has to do now:

[Read more…]

Filed Under: FHIR, Health data, patient engagement Tagged With: devdays, fhir, health data, health IT, hl7, morgan gleason, patient innovation 1 Comment

June 11, 2020 By e-Patient Dave 25 Comments

How is herd immunity working out for Sweden?

Two months ago I blogged about virus data, and noted that a “natural experiment” was happening in Scandinavia, where Sweden was trying a strategy of herd immunity. It appears to be a complete failure.

The idea was that herd immunity would cause the number of new COVID-19 cases to decline, without the shutdown policies and economic impact adopted by its Scandinavian neighbors. But the rate of new cases in Sweden hasn’t declined, while its neighbors’ all have:

[Read more…]

Filed Under: Coronavirus Tagged With: coronavirus, covid-19, herd immunity, scandinavia, sweden 25 Comments

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