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December 7, 2013 By e-Patient Dave 17 Comments

My best friend has died.

Levy family visit 2007
Dorron & family during their visit when I was sick

The smartest man I’ve ever worked with, my best friend, died unexpectedly this week. I’m en route to Tel Aviv for his funeral. He’d been having significant swings in his health, and this time, just as it seemed there was a breakthrough, time ran out.

His name was Dorron Levy, and my daughter describes him to friends as the Israeli version of me. He taught me how to think about complex problems. He taught me to be very picky about coffee. His family and I fell in love. And he taught me how to construct a speech in a way that it opens a big question in an audience’s mind and then fills it, leaving them with a new view of how the world works.

He loved books, he loved solving impossible problems, he loved learning, and he loved teaching. (He once said the biggest compliment was to hear “You really taught me something.”) He loved digging down into the deep underlying causes. And when that led to solving an impossible problem, the glee on his face was a wonder to see. And as a dual citizen – born in Denver to Israeli parents – he was extremely astute about differences in culture.

I worked with Dorron at Indigo America in the 1990s, [Read more…]

Filed Under: Uncategorized 17 Comments

November 28, 2013 By e-Patient Dave Leave a Comment

Engage With Grace: annual Thanksgiving blog rally on responsibility about end of life

Once again this year, Alexandra Drane of Eliza Corp., and friends, have coordinated the Engage With Grace blog rally, in which scores of healthcare bloggers devote their site, for a day or more, to this important topic.

They chose this time of family get-togethers to encourage conversations about our end of life choices. It may seem odd, but what other opportunities do we have to discuss, in quiet moments, this most intimate of subjects?

In case you haven’t seen it, here’s Alex’s talk at TEDMED 2010 in San Diego, with the moving story of her sister-in-law’s death – and how very, very important it was to her daughter (to this day) that her mother’s wishes were honored.

Be sure your wishes are known. Even if you don’t expect your words to matter for a long, long time, say them now.

Here’s “The One Slide” with the five questions Engage With Grace asks us to answer. In fact, you can go to their site and register your wishes.

[Read more…]

Filed Under: Uncategorized Leave a Comment

November 27, 2013 By e-Patient Dave

The Garfield Project: learning from the death of our 20th President

James Garfield (from WhiteHouse.gov)
James Garfield (source: WhiteHouse.gov)

One of my most potent, visionary, and interesting clients this year was back in February – St. Luke’s Health System in Boise. (Did you know Boise is pronounced Boissy, not Boizey?)

I could say a lot about the time I spent working with them. Their CEO David Pate had heard me speak a year earlier at a small CEO roundtable, and subscribed to this blog. When I posted my RFP for my skin cancer, he wrote and said “I’ve got a proposition. Come do your talk as Grand Rounds, and we’ll do the surgery for free.” I said “Thanks but no thanks – but since you asked…” and we started a discussion that led to a multi-day engagement, working with their leadership team and giving a keynote to a big leadership meeting last winter.

I subscribed to his blog too, and in today’s feed is a fascinating story: Learning from the 20th President. That president was Garfield, who died 132 years ago. He was shot, but the bullet didn’t kill him – an infection did, months later, almost certainly caused by the stream of doctors who stuck their unwashed fingers and tools in him to try to find the bullet.

[Read more…]

Filed Under: Leadership, patient safety

November 22, 2013 By e-Patient Dave 1 Comment

Speaker Academy #14: core speech elements – “Data makes you credible. Stories make you memorable.”

This is the latest in the Speaker Academy series, which started here. The series is addressed to patients and advocates who basically know how to give a talk but want to make a business out of it. I’ll try to be clear to all readers, but parts may assume you’ve read earlier entries.

Several times a week  I find myself citing this tweet, from Sept. 5. That means it’s time to blog it, so I can find it when I want to.:-)

Tweet: Data makes you credible, stories make you memorable

It’s by Elizabeth Bailey @PatientPOV, author of The Patient’s Checklist.

This is vital advice for patients who have a story and want to be a memorable, effective speaker. I know you want to tell your story, partly because you want others to know what you went through, partly so they can be better prepared themselves as a patient, and often because you want to raise awareness of the issues you faced. It’s important: stories evoke emotion and lead to caring. Stories connect to the base of the brain, and can be compelling.

But although a single story can be compelling, it’s not enough to create change. A single story is called an anecdote – an isolated case – and every scientist and every policy person is trained to not build policy on a single case. A foundation for change requires larger data.

I’d never heard someone connect those dots as clearly as this tweet – and that’s why I’ve been quoting this tweet so much. In my own speeches, I tell my story, and then I back it up with data:

  • “If I read two articles a day, after a year I’d be 400 years behind.”
  • “The lethal lag time: research doesn’t reach doctors until 2-5 years later”
  • “Zero cases of ‘death by googling’ in a three year search”

Depending on the audience I’ll then pull out other facts, but those are the core. So: the basic structure of my talks is this:

  1. Connect with people’s hearts with your story
  2. Present facts (data) that establish “It’s not just me. This is big enough to do something about.”
  3. Then you need to give them a clear sense that they can do something about it – it’s not hopeless.
    • This is vital – people hate to feel hopeless, so you have to show them a pathway to a better future, or they’ll stop thinking about you, your story, and your data … just as surely as when you cause cognitive dissonance (Speaker Academy #4).

Future posts will get into the third one. It’s important, because while #1 and #2  create the need for change, the last thing you want to do is leave the audience just feeling bad or feeling powerless.

Thank you, Elizabeth!


Next in the series: #15: The contract

Filed Under: public speaking, Speaker Academy 1 Comment

November 18, 2013 By e-Patient Dave 11 Comments

New look for the website!

New banner screen grabIt’s time for a new look!

After three years with a “Facebook Blue” banner at the top of the site, I’m switching to this new one. This one does two things:

  • It uses the graphic identity of my book cover, Let Patients Help.
  • It takes advantage of the new publicity photo all patients got (free!) at the Medicine X conference at Stanford this year.

In a way, my face is as close as I’ll get to a logo. :)   I worked for a couple of months this summer with design consultant Jonathan Klein, trying to figure out what I wanted to convey. Then the other day while talking with my web consultant Alicia Staley (mid-flight!) this idea evolved. Love it! Great ideas pop to the surface when @Stales and I jabber.

Finally, my book cover designer Tania Helhoski of BirdDesign Studio did the art, since she also created the book cover this was based on.

What do you think? Give us love! Or pick the nits.

p.s. There’s more to come – more changes along the same line. Big things in the wind!

Filed Under: Business of Patient Engagement 11 Comments

November 17, 2013 By e-Patient Dave 9 Comments

Wonderful experience at #AMIA2013

AMIA 2013 standing O
Photo of standing ovation by Gunther Eysenbach

AMIA is the American Medical Informatics Association. I just gave the opening keynote at their annual conference. What a thrill.

“Informatics” has various definitions, but what it boils down to is that it’s everything about the use of I.T. to support clinical activities. Or, as one senior figure told me at dinner last night, “Informatics is computer science that cares about what’s in the data.” (That’s as opposed to computer science where all they do is move the data around, regardless of what’s in it.)

AMIA has a special spot in my heart because my primary physician Dr. Danny Sands is one of the best known figures in it. Walking around with him there, it’s obvious how many people love him.

And, well, these are my people: data geeks! My whole career has been involved one way or another with information technology, and that’s what this association is about.

I had extreme anxiety about this talk, partly because I so wanted to do justice to the many fine people I know there who invited me, partly because it was a huge audience (2,000), but also because I only had one hour, and I had two hours of things to say. So many important things to think about – what to include and what not? And how to put it together in a sequence that builds to a fitting conclusion?

Well, it worked out. A standing ovation (see photo). What an honor, what a thrill.

I’m truly humbled, thrilled and happy to be able to connect this well with an audience that I so admire. Thank you especially to AMIA board member Bonnie Westra, of the U of Minnesota School of Nursing, and John Holmes of the U of Pennsylvania Perelman School of Medicine [see comment below], for initiating this invitation. I was invited to last year’s event but was already booked – so we signed this deal in July 2012.  Couldn’t have worked out better.

A taste of how fun it was is in the Twitter feed below.
[Read more…]

Filed Under: Events 9 Comments

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