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May 7, 2019 By kristin.gallant Leave a Comment

Getting ornery about open access: What I’m doing in 2019, part 3

Screen capture of the essay's web page, including audio conversation. Click to visit it.
Click to visit the essay and audio conversation

In our previous episode I mentioned that “ornery” is a form of the word “ordinary,” and said “It’s the ‘ornery’ people who suffer when the system doesn’t achieve its potential. I stand with them.”

[Read more…]

Filed Under: Uncategorized Leave a Comment

April 29, 2019 By e-Patient Dave 3 Comments

Getting ornery on social media: What I’m doing in 2019, episode 2

Sunday night I blogged this:

I haven’t been blogging nearly as much as I did five years ago, largely because my early blogging was all about trying to figure out “what the heck is up with the American healthcare system???” … it’s been two years since I had any new realizations.

Why would “figuring it out” make me stop blogging? Because as a change activist who’s also a public speaker, I’m gripped by one question: “What could be said that would make any difference?” There literally is no point in saying anything else. So once I realized how locked-in the system is, how intractable it is to change, I lost interest in flapping my gums and fingers.

But new things are in the wind, and it’s time to start pushing out those top learnings as foundation for what’s next. So, game on – in responses to two tweets, I got ornery:

[Read more…]

Filed Under: consumerism, cost cutting edition, Culture change, Evolution, Health policy, Patients as Consumers, Social media 3 Comments

April 28, 2019 By e-Patient Dave 8 Comments

What’s up with the US health system?? (What I’m doing in 2019, episode 1)

Click to enlarge this composite of images from previous posts

I haven’t been blogging nearly as much as I did five years ago, largely because my early blogging was all about trying to figure out “what the heck is up with the American healthcare system???” and it’s now been two years since I had any new realizations. Here’s a summary of that, then some quick hits on recent and upcoming events.

No, wait – this part turned out long, so I’ll continue tomorrow with the “quick hits.” For today, here’s the baseline I reached two years ago.

[Read more…]

Filed Under: cost cutting edition, Evolution, Health policy, Patients as Consumers, The Big Ugly Tagged With: american healthcare, health costs, patient empowerment 8 Comments

April 11, 2019 By e-Patient Dave 4 Comments

50th anniversary of the first Our Bodies, Ourselves meeting! May 10, Boston

Updates May 8:

  • Address correction! It’s 120 Tremont St, not 20 Tremont St.
  • Not surprisingly, it’s sold out with waitlist. If you want to add yourself to the waitlist, write to cwhhr@suffolk.edu
Click image to register on Eventbrite.

I’ve often blogged and spoken about the many parallels between the women’s movement and the patient empowerment movement. Here’s one perfect quote from Miriam Hawley, one of the founders of the Boston Women’s Health Book Collective, whom I met last year:

[Read more…]

Filed Under: Culture change, Health policy, Innovation, Leadership Tagged With: culture change, feminism, our bodies ourselves, patient empowerment, patient engagement, women's health 4 Comments

March 18, 2019 By e-Patient Dave 1 Comment

#FHIR for non-technical professionals: a two-session course Tuesday-Wednesday

If you’re in the health data world, you’ve surely heard of FHIR. If you work in that world but you’re not a hands-on data wrangler, you might have heard of it but not really have a clue what it means in the real world.

Wouldn’t it be nice if there were a way to learn about it? There is. Register here.

[Read more…]

Filed Under: FHIR, Health data, Innovation 1 Comment

March 14, 2019 By e-Patient Dave Leave a Comment

Criminal investigation of Facebook begins

Chances are you’ve heard about this already but the news coverage hasn’t been saying what I think is significant, so I’m posting. The New York Times piece starts thus:

Federal prosecutors are conducting a criminal investigation into data deals Facebook struck with some of the world’s largest technology companies, intensifying scrutiny of the social media giant’s business practices as it seeks to rebound from a year of scandal and setbacks.

I heard about this while out for pizza with my chorus buddies after a performance. Friends on Twitter were talking about #FacebookDown, so I popped open my phone’s browser and got this: Facebook was down.

“Something went wrong” indeed. :-)

[Read more…]

Filed Under: Facebook Leave a Comment

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