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November 22, 2013 By e-Patient Dave 1 Comment

Speaker Academy #14: core speech elements – “Data makes you credible. Stories make you memorable.”

This is the latest in the Speaker Academy series, which started here. The series is addressed to patients and advocates who basically know how to give a talk but want to make a business out of it. I’ll try to be clear to all readers, but parts may assume you’ve read earlier entries.

Several times a week  I find myself citing this tweet, from Sept. 5. That means it’s time to blog it, so I can find it when I want to.:-)

Tweet: Data makes you credible, stories make you memorable

It’s by Elizabeth Bailey @PatientPOV, author of The Patient’s Checklist.

This is vital advice for patients who have a story and want to be a memorable, effective speaker. I know you want to tell your story, partly because you want others to know what you went through, partly so they can be better prepared themselves as a patient, and often because you want to raise awareness of the issues you faced. It’s important: stories evoke emotion and lead to caring. Stories connect to the base of the brain, and can be compelling.

But although a single story can be compelling, it’s not enough to create change. A single story is called an anecdote – an isolated case – and every scientist and every policy person is trained to not build policy on a single case. A foundation for change requires larger data.

I’d never heard someone connect those dots as clearly as this tweet – and that’s why I’ve been quoting this tweet so much. In my own speeches, I tell my story, and then I back it up with data:

  • “If I read two articles a day, after a year I’d be 400 years behind.”
  • “The lethal lag time: research doesn’t reach doctors until 2-5 years later”
  • “Zero cases of ‘death by googling’ in a three year search”

Depending on the audience I’ll then pull out other facts, but those are the core. So: the basic structure of my talks is this:

  1. Connect with people’s hearts with your story
  2. Present facts (data) that establish “It’s not just me. This is big enough to do something about.”
  3. Then you need to give them a clear sense that they can do something about it – it’s not hopeless.
    • This is vital – people hate to feel hopeless, so you have to show them a pathway to a better future, or they’ll stop thinking about you, your story, and your data … just as surely as when you cause cognitive dissonance (Speaker Academy #4).

Future posts will get into the third one. It’s important, because while #1 and #2  create the need for change, the last thing you want to do is leave the audience just feeling bad or feeling powerless.

Thank you, Elizabeth!


Next in the series: #15: The contract

Filed Under: public speaking, Speaker Academy 1 Comment

November 18, 2013 By e-Patient Dave 11 Comments

New look for the website!

New banner screen grabIt’s time for a new look!

After three years with a “Facebook Blue” banner at the top of the site, I’m switching to this new one. This one does two things:

  • It uses the graphic identity of my book cover, Let Patients Help.
  • It takes advantage of the new publicity photo all patients got (free!) at the Medicine X conference at Stanford this year.

In a way, my face is as close as I’ll get to a logo. :)   I worked for a couple of months this summer with design consultant Jonathan Klein, trying to figure out what I wanted to convey. Then the other day while talking with my web consultant Alicia Staley (mid-flight!) this idea evolved. Love it! Great ideas pop to the surface when @Stales and I jabber.

Finally, my book cover designer Tania Helhoski of BirdDesign Studio did the art, since she also created the book cover this was based on.

What do you think? Give us love! Or pick the nits.

p.s. There’s more to come – more changes along the same line. Big things in the wind!

Filed Under: Business of Patient Engagement 11 Comments

November 17, 2013 By e-Patient Dave 9 Comments

Wonderful experience at #AMIA2013

AMIA 2013 standing O
Photo of standing ovation by Gunther Eysenbach

AMIA is the American Medical Informatics Association. I just gave the opening keynote at their annual conference. What a thrill.

“Informatics” has various definitions, but what it boils down to is that it’s everything about the use of I.T. to support clinical activities. Or, as one senior figure told me at dinner last night, “Informatics is computer science that cares about what’s in the data.” (That’s as opposed to computer science where all they do is move the data around, regardless of what’s in it.)

AMIA has a special spot in my heart because my primary physician Dr. Danny Sands is one of the best known figures in it. Walking around with him there, it’s obvious how many people love him.

And, well, these are my people: data geeks! My whole career has been involved one way or another with information technology, and that’s what this association is about.

I had extreme anxiety about this talk, partly because I so wanted to do justice to the many fine people I know there who invited me, partly because it was a huge audience (2,000), but also because I only had one hour, and I had two hours of things to say. So many important things to think about – what to include and what not? And how to put it together in a sequence that builds to a fitting conclusion?

Well, it worked out. A standing ovation (see photo). What an honor, what a thrill.

I’m truly humbled, thrilled and happy to be able to connect this well with an audience that I so admire. Thank you especially to AMIA board member Bonnie Westra, of the U of Minnesota School of Nursing, and John Holmes of the U of Pennsylvania Perelman School of Medicine [see comment below], for initiating this invitation. I was invited to last year’s event but was already booked – so we signed this deal in July 2012.  Couldn’t have worked out better.

A taste of how fun it was is in the Twitter feed below.
[Read more…]

Filed Under: Events 9 Comments

November 16, 2013 By e-Patient Dave 7 Comments

New speech at @Berci’s Healthcare Social Media course in Budapest

Last week in Budapest I had the thrill at delivering a guest lecture at Semmelweis University, in the Healthcare Social Media course created by 28 year old wizard and “medical futurist” @Berci (Bertalan Meszko). I’ll have more to say later but I want to get the video posted, because friends familiar with my work are saying “Wow!” about this new approach, and I want to hear why, in the comments! Please speak.

Timeline:
[Read more…]

Filed Under: Events, Speaker Academy 7 Comments

November 8, 2013 By e-Patient Dave 5 Comments

Patients in Power conference: eruption in the session on Cross Border Care

I’m extracting this from my previous post into a separate one. As I say below, payment policy isn’t my focus, but what happened in this session is an important example of the difference it makes when patients are running the show and dominate the audience. Don’t jump to conclusions until you get to the end.
____________

Whoa: this subject has caused eruptions among the patients in the audience. After the speakers finished (see below), during Q&A an audience member explained what was really going on, which had not been made clear by the (non-patient) panelists. An audience that had been silent all day became a small roar:

“You are out of touch with reality: look downward, at the lower parts of society!”

“We have a child with a brain tumor – he had surgery … we have no insurance card, and he has complications and now he cannot get surgery!”

Any of this sound familiar in the U.S.? Yes – but you don’t generally hear it said loudly, by people who feel the personal impact, at conferences.

The subject was the European Directive on Cross Border Care, which gives insured patients the right to go get care in another member country. The details of this policy are over my head, but in some ways the arguments are familiar in the U.S.: speakers on the dais gave talks about important new things that are possible, but to the patients in the audience it’s a whole lot of BS, because if you can’t go do what the speakers are talking about, it’s a waste of time: [Read more…]

Filed Under: Events, Government, Health policy 5 Comments

November 8, 2013 By e-Patient Dave 1 Comment

Patients In Power conference: European Charter of Patient Rights

European Charter of Patient RightsLatest update (below) 9:50 a.m. ET. I moved the section on cross-border care into another post.

I wish I had three heads to blog and absorb everything going on at the Patients In Power conference, described in my previous post. (I have immense respect for capable journalists!) But, we do what we can.

The current session is on health reforms, including the work to make equal access to care a reality across borders within Europe. The first speaker was Mariano Votta, Director of Active Citizenship Network. From their About page:

ACN’s mission is to promote and support the construction of the European citizenship as an “active citizenship” which means the exercise of citizens’ powers and responsibilities in policy-making.

Hey, that sounds a lot like the Society for Participatory Medicine’s vision of patients as active partners, with power and responsibility! So it’s no surprise that a primary focus of Active Citizenship is Patients’ Rights. And they have a European Charter of Patients’ Rights, created years ago. Until this trip, I’d been unaware of it! Fascinating:

  1. Right to Preventive Measures [Read more…]

Filed Under: Events, Health policy 1 Comment

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