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December 10, 2013 By e-Patient Dave 13 Comments

Speaker Academy #15: The contract

Addition October 30, 2014: in comments a meaty discussion has started on a subject that’s related but different – NDA’s (Non-Disclosure Agreements). They rarely arise in speaking engagements but they can often be part of “the business of patient engagement.” Have a look if you’re interested.

e-Patient Dave contract template 2013This is the latest in the Speaker Academy series, which started here. The series is addressed to patients and advocates who basically know how to give a talk but want to make a business out of it. I’ll try to be clear to all readers, but parts may assume you’ve read earlier entries.

I’m at the Institute for Healthcare Improvement’s 25th annual forum in Orlando, participating in a day of patient speaker training. In side conversations one thing that came up is the business relationship: getting paid. And that starts with the contract.

Do you need a contract?

Contracts weren’t important for me when I had few engagements and little pay. But when things got busy I needed structure. The contract I use (at right) provides:

  • A clear record of logistical details: where, when, arrival & departure, how you can list it, etc.
  • A clear record of finances: fee, expense reimbursement, and down payment
  • Who’s expected to be in the audience. (Today one speaker told of a case where she was sure an audience would be nurses, and found out at the last minute it was patient advisors!)

And of course in the rare case where a relationship goes sour, the contract records who owes what to whom. It’s not that you’ll end up in court – to the contrary, it keeps you out of court, because the rules are already in writing.

I also added sections for things that kept popping up as problems: [Read more…]

Filed Under: Business of Patient Engagement, Speaker Academy 13 Comments

November 18, 2013 By e-Patient Dave 11 Comments

New look for the website!

New banner screen grabIt’s time for a new look!

After three years with a “Facebook Blue” banner at the top of the site, I’m switching to this new one. This one does two things:

  • It uses the graphic identity of my book cover, Let Patients Help.
  • It takes advantage of the new publicity photo all patients got (free!) at the Medicine X conference at Stanford this year.

In a way, my face is as close as I’ll get to a logo. :)   I worked for a couple of months this summer with design consultant Jonathan Klein, trying to figure out what I wanted to convey. Then the other day while talking with my web consultant Alicia Staley (mid-flight!) this idea evolved. Love it! Great ideas pop to the surface when @Stales and I jabber.

Finally, my book cover designer Tania Helhoski of BirdDesign Studio did the art, since she also created the book cover this was based on.

What do you think? Give us love! Or pick the nits.

p.s. There’s more to come – more changes along the same line. Big things in the wind!

Filed Under: Business of Patient Engagement 11 Comments

November 4, 2013 By e-Patient Dave 3 Comments

The “collegial relationship” – in medicine and in business

The “once this year” section was updated 11/5 for better wording.

HealthLeaders cover Sept 2009Of all the statements I’ve heard in medicine, in hours and hours of speeches and talk, none has stopped me in my tracks more than this:

“If you have a collegial relationship, you can talk about it.”

The event was a conference at Maine Health, 5/17/12, and the speaker was Richard Rockefeller, MD. I’d given a talk that morning, and he was part of a later panel.

His name stuck in my mind because he was one of the “White Paper Advisors” cited by e-patient founder “Doc Tom” Ferguson. I knew that Rockefeller was no longer practicing, so it was a special treat to get to meet him.

The statement arose during Q&A. A physician in the audience asked a very common question:

“I understand that patients today can contribute valuable information. But what do you do when they bring in something that really is garbage?

Richard thought for a moment, and said:

“If you have a collegial relationship, you can talk about it.”

Perfect. “Collegial” means you’re colleagues – I googled “define:collegial” and got these, among others:

“relating to or involving shared responsibility, as among a group of colleagues.” (Oxford)

“marked by power or authority vested equally in each of a number of colleagues” (Merriam-Webster)

“Colleagues are those explicitly united in a common purpose and respecting each other’s abilities to work toward that purpose.” (Wikipedia’s entry on “Collegiality.”)

Shared power & authority, common purpose and respect. Doesn’t that sound insipring?

Rockefeller’s response struck me for three reasons:

[Read more…]

Filed Under: Business of Patient Engagement, Participatory Medicine 3 Comments

November 3, 2013 By e-Patient Dave 3 Comments

Speaker Academy #13: Strategic freebies

This is the latest in the Speaker Academy series, which started here. The series is addressed to patients and advocates who basically know how to give a talk but want to make a business out of it. I’ll try to be clear to all readers, but parts may assume you’ve read earlier entries.

There seems to be a storm brewing around the issue of speaking for free (or not), which I’ve written about several times (most recently last week). I expect it’s going to get louder, so I want to clarify some points. Then I want to get back to engaging with the audience!

This may be controversial to some readers; fine – I’m open. Let’s discuss or (correct me) in the comments:

  • Your time is your own. I’ve never said you should never speak for free.
  • I do say that you should be thoughtful about how you spend your time, and not be suckered by event organizers who flatter you about your greatness but offer you nothing. Those people are usually parasites, making a living off your time and your thoughts.
    • My favorite low-life conference organizer, World Congress, once pumped my brain for an hour about who should speak at an event they were organizing. They were so enthused I assumed that after a couple of years wrangling with me, I was finally going to speak there. Nope: they didn’t know a single thing about the conference topic, so they were just pumping my brain! Then they went and got those people to speak – for free, I’m sure, while advertising that they’d convened a summit on the subject.

Particularly relevant at this moment is that some events truly do bring you good exposure, which leads on to good things.

My view isn’t the only view, but: in my view perfectly good reasons to do a freebie include (but aren’t limited to):  [Read more…]

Filed Under: Business of Patient Engagement, Speaker Academy 3 Comments

October 28, 2013 By e-Patient Dave 6 Comments

Speaker Academy #12: “Slaves of the Internet, Unite!” (NYTimes Sunday Review)

NYTimes Slaves of the Internet illustration

This is a brief addition to the Speaker Academy series, which started here. The series is addressed to patients and advocates who basically know how to give a talk but want to make a business out of it. I’ll try to be clear to all readers, but parts may assume you’ve read earlier entries.

This post is particularly about how to deal with clients who say “We’d be really honored to have you speak for us. For free. We love your work, but it’s worth exactly nothing to us.”

Yesterday’s New York Times Sunday Review had a piece by Tim Kreider that’s so close to what we discussed here that a half dozen people tweeted it at me. :-)  It’s about freelancing as a writer or illustrator, but the lessons are identical for patient speakers. In the Times illustration at right, change the language from “artists” etc to “speakers” etc and you’ll recognize it.

Go read the piece. (It’s only 1600 words – 3-4 minutes for most people.) The author’s closing advice will sound familiar:

Here, for public use, is my very own template for a response to people who offer to let me write something for them for nothing:

Thanks very much for your compliments on my [writing/illustration/whatever thing you do]. I’m flattered by your invitation to [do whatever it is they want you to do for nothing]. But [thing you do] is work, it takes time, it’s how I make my living, and in this economy I can’t afford to do it for free. I’m sorry to decline, but thanks again, sincerely, for your kind words about my work.

Feel free to amend as necessary. This I’m willing to give away.

Tim Kreider is the author of “We Learn Nothing,” a collection of essays and cartoons.

Related posts here:
[Read more…]

Filed Under: Business of Patient Engagement, Speaker Academy 6 Comments

September 9, 2013 By e-Patient Dave 34 Comments

Ratty boxers: what it means to really, truly have no money

Clip art of an experienced penniless patientGlossary for non-English readers: “ratty” = poor condition; boxers = boxer shorts (Wikipedia).

This is an update on a post from three years ago about the business of patient engagement – the challenges of starting a business without funding or a proven business model. As regular readers know, after years of struggle I turned an important corner (my business reached break-even), and looking back, I want to explain something.

Back then my underwear included ratty boxer shorts. (I took a picture but you don’t want to see it.) In the face of my other bills, I couldn’t afford to buy new underwear. Yet time after time people invited me to come…

  • speak for free
  • advise their company for free on the phone
  • attend policy meetings for free.

Some even asked me to pay my own travel costs. See the recent post A turning point for patient voices, which details the irony in telling someone their voice is valuable but then saying it’s not worth spending a cent.

(Others did offer support, even for advice by phone. Early examples who come to mind include Emmi Solutions and InfoSurge – importantly, both are patient education companies!)

Like many experienced patients, back then I had plenty to say but I didn’t have any money. To attend an event and contribute value, I needed funding . I was the same person I am today – I just didn’t have any money. And I couldn’t spend money I didn’t have – I was being responsible.

How ironic that being responsible would squelch a patient.

[Read more…]

Filed Under: Business of Patient Engagement 34 Comments

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