Power to the Patient!
I’m live-blogging this from the Amazing Speeches session at the Partnership With Patients conference in Kansas City. As promised, here are the slides I just presented.
Here are the three of us who presented – a picture I just grabbed from Twitter, of course. :-)
From left: @TiffanyAndLupus, me, @KaitBRoe.
(Yes, I’m listing them by their Twitter names – an essential part of creating a speaking career is to have a strong consistent identity in social media!)
I was in Maine Wednesday night, speaking to the annual meeting of the excellent (and very E) Maine Quality Counts, which is one of the sixteen Aligning Forces for Quality (@AligningForces) communities, a project of the Robert Wood Johnson Foundation’s Pioneer Portfolio. Aside from the dinner speech, I also met with their awesome very-E consumer advisory board – I swear, I’ve never seen a more savvy, wised-up, activated bunch of patients. It was terrific.
As part of the trip they arranged some media coverage for the cause. First, here’s an unrehearsed four minute chat this morning on Good Day Maine: (ten second commercial at the start)
I love that we’re getting to the point where it’s possible to discuss “e-patient” and participatory medicine in a way that comes across gracefully!
Then I visited the Bangor Daily News, for a lengthy interview and some snapshots. Health reporter Jackie Farwell had really done her homework – we spent no time on “so tell me your story”; instead we dove right into what this all means. The article’s here, Then, photographer Troy Bennett shot another quickie video, in addition to the usual photo. Well done, both of you!
Takin’ it to the streets!
Three years ago this month, at the Medicine 2.0 Congress in Toronto (photo at right), I gave my first keynote: “Gimme My Damn Data.” As I detailed recently, it was the beginning of a movement. And now, this weekend at the same event (at Harvard Medical School), I’ve been invited to give the closing keynote:
“Gimme My Damn Data, Three Years On: What’s Changed, What Hasn’t, and What Still Needs To.”
I have my own thoughts, but I’m sure you do too. What do you think? One big thing that’s changed is that this is a movement with many voices – I’d love to include yours. Leave a suggestion in a comment here, and if I use it, I’ll credit you!
For starters on What’s Changed:
Starter on What Hasn’t and What Still Needs To:
What else?? I know there are tons more – help me!
Background information
Cross-posted from e-patients.net today. I know my subscribers here have been following the growth of this movement; look at this truly extraordinary development, created by one widow with two kids and no foundation funding, and a bunch of peer supporters.
This is a hint of what social media can enable in giving voice to the disenfranchised – in healthcare and everywhere. You can help – support it in a large or small way. Use our ready-to-click links below.:-)
Yes, “Regina” – you know who I mean.:-) You know someone’s a star in the firmament when they gain first-name status. (Especially in healthcare, where “the other Regina” happens to be Surgeon General!)
As we reported here in June, Regina Holliday has led a band of patient colleagues and professional partners in creating this event, hosted by EMR vendor Cerner, to train and develop patients’ skills as effective advocates and related topics.
This is as grass roots as it gets – please support it,
as I am, personally, with time and cash.
Also, SPM is providing the infrastructure
for tax-free donations to support patient travel.
Summary of links below:
Did you ever say something that, well, sorta took on a life of its own? This is a pretty good example.
The Video:
The story – short version:
You can’t make this stuff up. Here I am, a cancer patient from Nashua, New Hampshire who goes around raving enthusiastically about engaging patients in better care, and out of nowhere, tomorrow in a session I’m running, Tom Peters has something to say, and asked to comment. So though he wasn’t planned as a speaker, he’ll be in my session.
Thud.
(That’s the banner from the top of his site, TomPeters.com.) He’s the co-author of the absolute classic business book In Search of Excellence, and sixteen books since then. Here’s his Wikipedia page, that book’s Wikipedia page, his Twitter @tom_peters, his other books.
So, what is mister Management Guru doing, asking to comment at a medical conference? In the interest of time, I’ll interview myself.
What’s this event?
This is at the Eleventh Annual Quality Colloquium, at Harvard, today through Wednesday. It’s a top-tier conference on improving quality and safety in medicine.
What do you mean by that?
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