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September 24, 2014 By e-Patient Dave 1 Comment

Slides and links for today’s presentation to Rotary Club of Seattle

Seattle Rotary web bannerUpdated 9/29 with the promised additions

Seattle has the world’s biggest Rotary Club – a lot of sharp, focused Seattle business people. Very different from my usual talk to a medical conference … I’m talkin’ to these people as patients and family members! So the content is different, and some is new this week.

Here’s the video (32 minutes):

Seattle Rotary #4, September 24, 2014 on Vimeo.

Two notes about the video:

  • The fonts didn’t upload correctly so some of the layouts overflowed. (30 years into desktop publishing and they still can’t make it work reliably!) An accurate PDF of the slides is on Slideshare.
  • Around 31 minutes I say that I’ll post my call to action online: our society needs mid-level managers who know how to create a team and produce a result! They’re on slides 50-56.

As promised, links to material cited in the talk:
[Read more…]

Filed Under: Events, Health data, Participatory Medicine, public speaking 1 Comment

July 23, 2014 By e-Patient Dave 1 Comment

US News: 10 Tips from Empowered Patients. (Mine: the basics of empowerment)

Screen capture of US News web headlineLast week US News & World Report ran a “slide show” (series of short pages) with tips from 10 empowered patients. They’re all good – I recommend you go read them. (Click the graphic, or click here.)

Knowing that other patients would be giving lots of tips, for mine I decided to focus in mine on something that’s been on my mind a lot lately:

We’ve learned that the patient movement shares patterns with other cultural awakenings. Who knew?

I’m 64 years old. In the ’60s I learned that step one of empowerment is to know what you want. Step two is consciousness raising: Realize who’s saying what to whom, and what assumptions that might imply. Perhaps it’s what you’d like; if not, step three is to ask for it. 

Enlightened patients (and clinicians) know that nobody knows everything – neither patient nor clinician – and approach it as a partnership, in what we call ‘participatory medicine.’

It feels a little odd to be teaching empowerment principles (which I learned in college long ago) to a mass market audience, but increasingly I see this is what we need to do.

This is no small issue – it’s not just about patient rights per se. If people haven’t thought about what they want, and haven’t become conscious of what’s happening around them, and haven’t asked for what they want, then when advocates request change, earnest physicians have every right to say, “Look, my patients aren’t asking for this.”

So think about what you want, and see whether things are going the way you want.  That applies both in a hospital and in a doctor’s office – anytime you’re tending to someone’s health, including your own.

Filed Under: Health policy, Leadership, Participatory Medicine, patient engagement 1 Comment

June 30, 2014 By e-Patient Dave 2 Comments

Interview on WebM&M: “What could be said that would make any difference?”

WebM&M screen grab
Click to go to the interview

Sometimes the wheels turn slowly. Last August I was invited to be interviewed for “WebM&M,” an online feature that I’d frankly never heard of. The invitation said

I’d like to invite you to be a featured interviewee on the topic of “The Role of Patient Advocacy in Patient Safety” for AHRQ WebM&M, the online case-based journal on medical errors and patient safety. The Web site represents the federal government’s major effort to educate practicing doctors and nurses about patient safety. Together with its sister site AHRQ PSNet, AHRQ WebM&M gets nearly a million visits annually. You can visit the site at http://webmm.ahrq.gov.

WebM&M is managed by Bob Wachter MD (blog, Twitter Bob_Wachter), with whom I’ve crossed paths a few times; I described his work and my impression in a post here a while ago, and let’s just say I’d jump at anything he recommends. So we did the interview, and it faded away into the backlog of things being processed (by somebody else :-)).

Then a few weeks ago, up popped the transcript, ready for review. A few quick edits, and voilá: In Conversation with…Dave deBronkart (“e-Patient Dave”). It includes an 8 minute excerpt of the audio.

Honestly, I’m thrilled to have been invited to do this. Thanks to Bob, to AHRQ (the Agency for Healthcare Research and Quality) … and to every single one of the clinicians and patient advocates whose thoughts and advice in these past seven years have given me these thoughts.

[Read more…]

Filed Under: Health policy, Participatory Medicine, patient safety 2 Comments

November 4, 2013 By e-Patient Dave 3 Comments

The “collegial relationship” – in medicine and in business

The “once this year” section was updated 11/5 for better wording.

HealthLeaders cover Sept 2009Of all the statements I’ve heard in medicine, in hours and hours of speeches and talk, none has stopped me in my tracks more than this:

“If you have a collegial relationship, you can talk about it.”

The event was a conference at Maine Health, 5/17/12, and the speaker was Richard Rockefeller, MD. I’d given a talk that morning, and he was part of a later panel.

His name stuck in my mind because he was one of the “White Paper Advisors” cited by e-patient founder “Doc Tom” Ferguson. I knew that Rockefeller was no longer practicing, so it was a special treat to get to meet him.

The statement arose during Q&A. A physician in the audience asked a very common question:

“I understand that patients today can contribute valuable information. But what do you do when they bring in something that really is garbage?

Richard thought for a moment, and said:

“If you have a collegial relationship, you can talk about it.”

Perfect. “Collegial” means you’re colleagues – I googled “define:collegial” and got these, among others:

“relating to or involving shared responsibility, as among a group of colleagues.” (Oxford)

“marked by power or authority vested equally in each of a number of colleagues” (Merriam-Webster)

“Colleagues are those explicitly united in a common purpose and respecting each other’s abilities to work toward that purpose.” (Wikipedia’s entry on “Collegiality.”)

Shared power & authority, common purpose and respect. Doesn’t that sound insipring?

Rockefeller’s response struck me for three reasons:

[Read more…]

Filed Under: Business of Patient Engagement, Participatory Medicine 3 Comments

September 26, 2013 By e-Patient Dave 2 Comments

“Typesetters have proofreaders. Doctors don’t.” Let Patients Help!

iHealthBeat screen capture (click to visit the article)
Click to visit the article

Please see the “call to action” at bottom of this post: if you have a story of patients improving the chart – or a provider preventing it – put it in a comment on iHealthBeat.
__________

I have a new essay in iHealthbeat’s “Perspective” feature: Patient Participation: Let Patients Help With Medical Record Quality, Completeness.

This was a pretty great invitation. As it says at the bottom of the site, “iHealthBeat is published daily for the California HealthCare Foundation by The Advisory Board Company.” CHCF (the foundation) has done a ton of great work over the years at understanding the practical realities of medicine as it works out for families and communities, and The Advisory Board Company is a respected, high profile company that advises health leaders of all sorts. So when Managing Editor Kate Ackerman wrote to me – six months ago! – inviting an essay, I was thrilled:

I wanted to see if you’d be interested in writing a Perspective article for iHealthBeat on the importance of patient engagement in health IT efforts. Here’s a link to our Perspectives archives so you can get a better sense of the feature: http://www.ihealthbeat.org/perspectives-archive.aspx

One never knows why the timing works out the way it is, but it didn’t work then, and when she asked again recently, it did. Of course, back then the angle wasn’t clear to me, and this time it was: Typesetters have proofreaders; clinicians don’t. Let patients help!

If you want to support the movement, see if there’s something you could add an anecdote in the comments on that post – a story you know, first-hand or close, where patient and family engagement in the medical record prevented a disaster. Or helped in some smaller way.

 

Filed Under: Health data, Health policy, Participatory Medicine, patient engagement 2 Comments

September 14, 2013 By e-Patient Dave 3 Comments

From Let Patients Help: “For patients: collaborating effectively with your clinicians” by Dr Danny Sands

In a Twitter chat this afternoon, friend Dr. Jack West noted that some e-patients are great to work with and others, not so much. It’s obvious we need to teach people how to do this effectively – both docs and patients alike … sort of a “patient engagement handbook.”

So I decided to publish this, from the “tip sheets” section of my book Let Patients Help: A Patient Engagement Handbook: :-) This part is written by my primary physician, e-patient pioneer Dr. Danny Sands.

Let Patients Help front cover

For patients: collaborating effectively
with your clinicians

By Dr. Danny Sands

  1. Appreciate that healthcare should be a collaboration among the patient, the patient’s caregivers and family, and clinicians.
  2. Be mutually respectful of each other’s contributions. Your physician is an expert in medicine, but you are an expert in you.
  3. Take responsibility for your health—healthcare is not a spectator sport: it’s participatory.
  4. Prepare for your visit: read about your conditions, review your record, make a list so you don’t forget, and discuss the agenda in advance. [Read more…]

Filed Under: books, Participatory Medicine, patient engagement 3 Comments

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