I’m Chief Patient Officer for PocketHealth, a Toronto startup that’s beginning to “launch the rocket ship” and head for “escape velocity.” PocketHealth retrieves a patient’s medical imaging and puts it in the cloud, so the patient can download or share the image with anyone they want, anytime they want, at full diagnostic quality. It is my “gimme my damn data” dream incarnate, in radiology.
Patient data access:
I’m a co-founder and co-chair of the HL7 Patient Empowerment workgroup, specifically focusing on expressing the voice of the patient in the FHIR health data standard. (Learn what it is and why it’s important.) As with everything in the HL7 standards organization, all meetings and proceedings are fully open and transparent (though sometimes quite nerdy); you’re welcome to attend. Our workgroup’s home page is bit.ly/hl7patients and our weekly calls are at 1pm ET Thursday; our projects have lots going on too, and are happy to have new participating members.
My personal health:
After a failed cataract operation in 2020 I acquired glaucoma in 2021 and have lost peripheral vision in my left eye. I’ve been immensely frustrated at how ophthalmology is not participatory yet and am working on it. First steps: join the FitEyes e-patient community, and start measuring my eye pressure at home, instead of only at occasional doctor visits – same as people do with blood pressure, bathroom scales, baby thermometers etc. You can’t manage what you can’t measure; knowledge is power.
Before COVID squashed travel I spoke at and participated in 650 events in 26 countries. Zoom meetings are just not the same, but I continue to speak virtually (recent review), and as a careful / conscious / triple-vaxxed senior (with antibody level >2,500), I’m ready (eager!) to resume live events.
One motto I’ve acquired is “If you live long enough, things change!” This is a huge factor in my continuing work on changing the culture of healthcare: for care to achieve its potential we need to understand the assumptions that underlie how health and care are structured today.
Current fascination: “The evolution of who knows what.” Did you know there’s only been one century in all of human history where doctors actually knew what they were doing, and patients did not and could not? That century is over, and it changes how healthcare might achieve its potential.
I listen to audio books and podcasts constantly, including three themes beyond news:
- Healthcare’s evolution and limitations: The Structure of Scientific Revolutions, The Emperor of All Maladies, How Doctors Think, The Patient Will See You Now, The Anatomy of Hope, The Gene, The Hospital: Life, Death, and Dollars in a Small American Town
- How business methods have changed since my early-career days in product management: Blitzscaling, The Effortless Experience, Radical Focus, Platform Revolution …
- Anti-racist self-education: How the South Won the Civil War, The Mismeasure of Man, How to Be an Anti-Racist, Why I’m No Longer Talking to White People about Race…