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November 28, 2012 By e-Patient Dave 3 Comments

New Hospital Safety Score data: a key enabler for informed choice

Comparison of five hospitals' data (click to open PDF)
Comparison of five hospitals' data from this report (click to open PDF)

This is cross-posted from e-patients.net.

The PDF at right is a summary of sample data from this new dataset.

The Leapfrog Group is a highly respected patient safety organization. They’ve earned a reputation for carefully and thoughtfully assessing providers’ actual performance in quality and safety. Their mission statement:

To trigger giant leaps forward in the safety, quality and affordability of health care by:

  • Supporting informed healthcare decisions by those who use and pay for health care; and,
  • Promoting high-value health care through incentives and rewards.

Today, Leapfrog’s affiliated organization Hospital Safety Scores announced a major update of its A-through-F grades of thousands of US hospitals, and new smartphone apps to access the data on the fly.

Predictably, the hospitals who got an F – based on their own data! – are saying it’s “not a fair scoring system.” Happily, Leapfrog follows the best practices of open science: they fully disclose all their data, the methodology they used, and who designed the system. This means all buyers of care – e-patients, families, employers – can examine the data and assess claims of fairness for ourselves.

The full press release is here. I won’t take time to go into it; many others are doing so –  here’s a current Google News search and blog search. Here, I want to focus on two aspects that are core to participatory medicine: understanding the data, and why this matters.

[Read more…]

Filed Under: cost cutting edition, decision making, Participatory Medicine 3 Comments

November 21, 2012 By e-Patient Dave Leave a Comment

Engage With Grace: annual Thanksgiving blog rally on responsibility about end of life

Once again this year, Alexandra Drane of Eliza Corp., and friends, have coordinated the Engage With Grace blog rally, in which scores of healthcare bloggers devote their site, for a day or more, to this important topic.

They chose this time of family get-togethers to encourage conversations about our end of life choices. It may seem odd, but what other opportunities do we have to discuss, in quiet moments, this most intimate of subjects?

In case you haven’t seen it, here’s Alex’s talk at TEDMED 2010 in San Diego, with the moving story of her sister-in-law’s death – and how very, very important it was to her daughter (to this day) that her mother’s wishes were honored.

Be sure your wishes are known. Even if you don’t expect your words to matter for a long, long time, say them now.

Here’s “The One Slide” with the five questions Engage With Grace asks us to answer. In fact, you can go to their site and register your wishes. After the slide is their annual message. This time it’s about Steve Jobs, who met his end since last year’s message.

[Read more…]

Filed Under: Participatory Medicine Leave a Comment

November 21, 2012 By e-Patient Dave 17 Comments

Tool help please! Evernote? Workflowy? SpringPad?

Springpad logo
Springpad
Evernote icon
Evernote
Workflowy "head" image
Workflowy

Addition Thanksgiving morning: Your responses in the comments below have already gotten juicy-good and taken this to the next level. Don’t miss ’em. And thanks!

Thanksgiving starts my annual season to reflect and look ahead. It started five years ago – my first blog, “The New Life of Patient Dave,” was born at Thanksgiving, just after my cancer. Each year since then it’s been my time to ask: with all I’ve seen in the past year, people I’ve met, concerns I’ve heard, what’s next? Who will I be in the coming year?

And this year I need help. Tool help, to organize my thoughts. Because there are a lot. So if you’ve faced this too, what have you learned?

The work ahead:

[Read more…]

Filed Under: Business of Patient Engagement, My own CIO 17 Comments

November 12, 2012 By e-Patient Dave 12 Comments

Knowledge is leaky now. Farewell to centralized control; hello to rapid spread and discovery.

Too Big to Know covershift index coverPower of Pull coverYesterday I posted about discovering a really good year-old video about something I’ve often blogged: the importance of letting people see the prices of what they buy, in healthcare.

The process by which I found it is a crystal clear illustration of a profound change in how information moves around today. It’s totally different from before the web, and anyone who wants to understand the present and the future needs to understand how it works now. Because as hard as it may seem – especially to a trained scientist – the path to finding the best information is no longer through a methodical, linear, step by step process.

This drives some people insane, but it’s true. In the past year I’ve found four major publications about this from three unrelated sources, and I’m convinced.

First, the story; then about the books. (If you don’t know how Twitter works, ignore the jargon; it’s just a way of messaging, and this story isn’t about Twitter itself.)

How I ran across the video illustrates how the network of social media works, and how centralized control is becoming impotent:

  • [Read more…]

Filed Under: Social media 12 Comments

November 11, 2012 By e-Patient Dave 3 Comments

Great Robert Wood Johnson video “This Cost How Much?”

I’m always getting surprised by the vast resources out there that not only have I never seen, but nobody else has told me about, even when I write about something closely related. Latest example: this 7 minute video from last year on the need to publish prices of medical services.

(That’s my buddy and four-time cancer patient Jessie Gruman in the preview picture. The clarity of everything she says hides how deep her insights are: she’s a world-changer.)

I’ve blogged a lot about the problems patients face when they try to be responsible for health costs, so in a sense this video doesn’t contain anything new to my readers. BUT, this video existed a year ago, and I wish I’d known about it …. and there’s something about a well produced video that conveys the point effectively.

I could see this being used at the start of many sorts of health meetings.

This bit of awesomeness comes from the Robert Wood Johnson Foundation, of course. I feel like they’re the Smithsonian of research on improving health – so vast that nobody knows everything that’s in there. So I love it when I find something like this.

(Later I’ll post about the significance of how I found it.) <= Here’s that post.

Filed Under: cost cutting edition, Government, Health policy, Social media 3 Comments

November 7, 2012 By e-Patient Dave 2 Comments

“My Health Counts: e-Patients” (coming soon from WNED, PBS Buffalo)

Check this trailer for a new program, to be launched in January, produced by WNED, the PBS affiliate in Buffalo:

One of the challenges of starting a movement like this, especially a Society with little budget, is that you have to bootstrap, like any modern business: you take what you have, make something of it, make something of that, and build from there – always always listening for what others find valuable.

SPM member Regina Holliday’s magnificent “cinderblocks” conference Partnership with Patients was one superb example. Another is that as many of us have gone about our business, we’ve spread the word as we are able.

A lot of people we talk to are “getting it” – and sometimes that turns out to be someone with reach. And boy do I have news.

[Read more…]

Filed Under: Uncategorized 2 Comments

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