e-Patient Dave

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February 18, 2015 By e-Patient Dave 19 Comments

I’m 65! That’s *really* old (you’ll be amused) – and I love it.

Birthday candles (source: Wikipedia)
“Birthday candles”. Licensed under CC BY-SA 3.0 via Wikimedia Commons

Updated – see modified population graphic

Some people moan about adding years. I love ’em. Today I’m 65, and I want lots more! I wanna get old!

We the old and many
are coming for you!

Did you know more than half the humans who’ve ever been 65 are alive today? That’s partly because medicine keeps saving people like me, who tried to die in middle age. Thanks, medicine; now get ready for lots of us getting older, happily, with chronic conditions. (I myself have slightly elevated blood pressure, and I’m just emerging from “obese.”)

Like my classmate Jay Pollack, who posted on Facebook that he’s getting a pacemaker because medicine saved him twice in ten years.

Have you thought about my question last September about taking care of all the old people?  Or how about Pew Research’s new book Next America, which depicts among other things how America’s classic “age pyramid” is becoming rectangular? Each band in the graphic is a five year age group. We used to have very few 80+, and now it’s commonplace: (Graphic modified 10pm ET)

[Read more…]

Filed Under: Best of 2015, Events 19 Comments

February 17, 2015 By e-Patient Dave 1 Comment

Health 1.0, 2.0, 3.0: today’s flow of information has changed what’s possible

This 51 second animation accompanies my article last week in the BMJ, “From Patient Centred to People Powered: Autonomy on the Rise.” The video expresses, concisely, a slide that for years I’ve presented in 3-5 minutes. It’s an idea first published back in 2010 by Lucien Engelen, during the same time period when he was preparing for the TEDx Maastricht event in April 2011 where I spoke. It shows how the flow of valuable information has changed, which makes new things possible, as in all other parts of life.

From the BMJ article: [Read more…]

Filed Under: Best of 2015, Innovation, Leadership, Participatory Medicine, Patient-centered thinking, public speaking 1 Comment

February 11, 2015 By e-Patient Dave Leave a Comment

New BMJ article: “From patient centred to people powered: autonomy on the rise”

Screen capture of the article on the BMJ site

I’m thrilled to say that the BMJ, formerly the British Medical Journal, has just released a new article I wrote about the “social movement” aspect of our work, including the rationale for listening to the patient perspective.

Intended for medical audiences around the world, it’s part of a big, 21-article multimedia “Spotlight” supplement that will be in Thursday’s print edition; it was all released online yesterday. Over on the e-patient blog I posted the full list of articles, including the names of other members of our Society for Participatory Medicine who are in this issue. Big participation, big visibility!

This supplement, appearing in one of the world’s top medical journals, may well be the biggest moment yet in the history of our movement. It’s got hours of reading and listening, with contributions from eight countries, if I counted correctly.

Those of you in my generation – the era of many social movements – will relate to the parallels with what’s happening today: a whole class of people whose voice has been considered “not worthy” is speaking up, demonstrating capability, and pushing back when we’re told to “stay in our place.” :-)

Is it time for a new scientific field?

[Read more…]

Filed Under: Best of 2015, Health policy, Leadership, Participatory Medicine, patient engagement, Patient-centered tech, Patient-centered thinking Leave a Comment

January 26, 2015 By e-Patient Dave 8 Comments

NEHI Patient Engagement Fellowship

NEHI logoThere are stages of any movement, and make no mistake, the shift to participatory medicine is a social movement, a full-bore cultural movement. It’s a change in roles, a change in expectations, a change in beliefs about the validity of a new party’s perspective – in this case, the patient’s.

I’m fond of pointing out milestones, the turning points in our movement. One was the founding of the Society for Participatory Medicine in 2009. Another was when patient voices started to be invited to speak about patient issues in Washington policy meetings. Another was when the Institute of Medicine said in 2012 that a cornerstone of medicine must be “Patient/Clinician Partnerships” with “Engaged, empowered patients.” Then the OpenNotes project, the BMJ editors announcing their Patient Advisory Panel, the founding of the Patient Voice Institute last year … all are signs of the movement maturing and gaining acceptance in the establishment.

Today I’m thrilled to announce a small but significant step in another dimension: NEHI, the Network for Excellence in Health Innovation, has offered me a Fellowship in Patient Engagement – a part time six-month project, advising them about patient perspectives.

Here’s NEHI’s vision map – click it to visit their site. And note what’s at the top of the circle: Evidence, Action, and Policy Impact. My kind of people!

NEHI's vision map

Now the work starts. May this be the start of many such initiatives in many organizations that focus on improving healthcare!

For the record, here’s the 55 minute video of my keynote at NEHI’s 2013 annual meeting … as it says at the outset, this was a new approach: a new beginning and a new ending.

http://vimeo.com/76960537

Thank you, NEHI, for your vision, and let’s do this thing!

Filed Under: Best of 2015, Business of Patient Engagement, Health policy, Leadership, patient engagement 8 Comments

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