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February 4, 2015 By e-Patient Dave Leave a Comment

Coming to Switzerland. Add an event?

Swiss flag
Source: Wikipedia

Special invitation to Swiss readers! This is an opportunity to book an event this June at a greatly reduced price compared to my usual rates. Because it’s Switzerland. :)

Early in 2011 two extraordinary invitations arrived. The first was to speak at TEDx Maastricht, hosted by my now-good-friend Lucien Engelen at RUMC. It was an amazing TEDx, mostly about patients, with most speakers being what I now call “actual sick people.” Lucien gets it, and the experience was mind-blowing (and changed my life).

German cover from AmazonThe other was from a couple with a consulting business called IKF, in Lucerne, Switzerland. They completely see the e-patient future, and every spring since then they’ve invited my wife Ginny and me to come back. We don’t make much money on it, because they got me when this was all brand new, and c’mon, it’s Switzerland, and  the scenery is just unbelievable… I teach a half day session in the e-health course they teach at the university, and they organize a few speeches in the area at greatly reduced prices, for any sponsor. That covers the costs with a little left over.

Because they were sponsors way back in the beginning, in my price policy they qualify for the “BFF” discount, which we extend to everyone who books something as part of this annual trip. They were also the ones who told me I had to write Let Patients Help … so they could translate it into German for use in a textbook!  So I wrote it and they translated it. (I’m not kidding – this is the kind of change-oriented visionary I love to do business with. Wouldn’t you??)

(They also had Lucien write a section – no coincidence there!)

This year’s trip is June 7-13. If you’d like to sponsor an event – a speech, a private consultation, whatever – please contact andrea.belliger at ikf.ch who is coordinating.

Filed Under: books, Events Leave a Comment

December 22, 2014 By e-Patient Dave

Holiday break!

After 198 days on the road this year, 64 trips, 180,771 miles and ten countries, I’m taking a break. Off duty until January, then spending the first week of 2015 at meetings in London.

I’ll probably still blog when things come to mind. For those, scroll down. Meanwhile, for time-sensitive communications, see my Contact page.

May the holiday season bring you and yours all the best – and thank you to all my clients who’ve supported this important movement for better healthcare around the world!
[Read more…]

Filed Under: Uncategorized

October 16, 2014 By e-Patient Dave 7 Comments

e-Patient Request: colon cancer treatments, NYC area

Latest in the occasional series of e-Patient Requests.

A friend writes (anonymized):

Someone I know was just diagnosed with colon cancer. Yikes.

It seems to have been caught very early (routine colonoscopy, no symptoms) and she is now going through the genetic testing/biopsy/CAT scan stage over the next few weeks.

She asked me if I knew anyone who could tell me who the best drs (colorectal oncologist-surgeons) are in the NYC area. I’d deeply appreciate any advice you can give me for her. Thanks.

I don’t know individual doctors and I don’t know anything about colon cancer, but I know I’ve crossed paths with many of you out there. I realized that my Communities page has information about gut conditions IBD and celiac, but nothing about colon cancer. Help! I need two things:

  • Information on patient communities, to add to my page.
  • General advice on how to decide who’s “the best doctor” (which leads to the question “what is ‘best’?”)

And let’s add a third:

  • What-all does a newly diagnosed patient need to know, to get oriented? For me it was reassuring to know the actual odds, first-hand, from others who were in my situation – other patients. (Plus, a lot of their advice didn’t exist on medical websites.)

I’m hesitant to ask for specific recommendations here, because advice from strangers may not be worth much; I know first-hand that in a good community, advice is cross-vetted by a larger number of people. So I’m most interested in that.

If you want to offer the friend specific recommendations, please email me via my Contact page.

Filed Under: e-patient requests 7 Comments

September 24, 2014 By e-Patient Dave 1 Comment

Slides and links for today’s presentation to Rotary Club of Seattle

Seattle Rotary web bannerUpdated 9/29 with the promised additions

Seattle has the world’s biggest Rotary Club – a lot of sharp, focused Seattle business people. Very different from my usual talk to a medical conference … I’m talkin’ to these people as patients and family members! So the content is different, and some is new this week.

Here’s the video (32 minutes):

Seattle Rotary #4, September 24, 2014 on Vimeo.

Two notes about the video:

  • The fonts didn’t upload correctly so some of the layouts overflowed. (30 years into desktop publishing and they still can’t make it work reliably!) An accurate PDF of the slides is on Slideshare.
  • Around 31 minutes I say that I’ll post my call to action online: our society needs mid-level managers who know how to create a team and produce a result! They’re on slides 50-56.

As promised, links to material cited in the talk:
[Read more…]

Filed Under: Events, Health data, Participatory Medicine, public speaking 1 Comment

June 16, 2014 By e-Patient Dave 21 Comments

“The Big Ugly” meets Speaker Academy #19: What’s up with expense checks??

This is the latest in the Speaker Academy series, which started here. The series is addressed to patients and advocates who basically know how to speak on a subject but want to make a business out of it. I’ll try to be clear to all readers, but parts may assume you’ve read earlier entries.

I’m really not happy to be writing this, but push has come to shove. Two thirds of my expense reimbursements are past due, and fully a third of them are more than 90 days out.  I’ve seen some people stretch payments at times, but I’ve never seen anything like this.

The stories I’ve been getting about “gosh, sorry, there’s nothing we can do about it” or “gosh, the only person who can write checks went on vacation” or “we only print checks on Thursdays and she was out when she came back from vacation” are familiar, but this year they’re much more common.  What’s up, healthcare? Is The Big Ugly coming home to roost?

I wrote about The Big Ugly last year:

… something I’m starting to call The Big Ugly – a wave of suffering that will happen as the medical industry contracts, and everyone tries to find ways to maintain their income. Unfortunately when an industry shrinks, everyone can’t maintain the same income. As anyone knows who’s seen an industry die (like mine, typesetting; or steel in America, or what Detroit went through), it’s painful. Good people get hurt, and organizations fight for survival.

It’s interesting, because the people I work with, for the event are good and almost entirely on time with paying my fees. But expense reimbursements? They seem to go through a different approval and payment process. I mean, things get lost in the expense rabbit hole, and even my good-to-work-with friends are unable to extract them.

[Read more…]

Filed Under: Business of Patient Engagement, Speaker Academy, The Big Ugly 21 Comments

February 24, 2014 By e-Patient Dave Leave a Comment

“Patient Engagement in Health IT” is live – my first professional C.E. course

screen capture of course web page
Click to visit the course web page

After a year of work in partnership with the University of Minnesota School of Nursing, I’m thrilled to announce that my first commercial, professional continuing education course is live:

Patient Engagement
in Health Information

An online C.N.E. course
at the University of Minnesota
School of Nursing

Register here.

From the course web page:

Target Audience:
Healthcare team members interested in learning to plan for and implement supportive actions for patient engagement and activation through the use of health information technology (IT).

[Read more…]

Filed Under: Uncategorized Leave a Comment

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