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July 26, 2017 By e-Patient Dave 3 Comments

New essay in the Patient Experience Journal on “the paradigm of patient”

Essay in Patient Experience Journal's special issue on Patient InvolvementSeveral of you have commented that I started a series this spring on the evolution of my business and my advocacy over the past eight years, and then it stopped. Well, it hasn’t stopped, but the work itself has collided with the reporting about it.

I have a new essay, just published today, in Patient Experience Journal, which brings together a ton of interwoven issues I’ve been reading and thinking about: The paradigm of patient must evolve: Why a false sense of limited capacity can subvert all attempts at patient involvement.  It’s in that journal’s first Special Issue, devoted to patient involvement in producing healthcare.

[Read more…]

Filed Under: Participatory Medicine, patient engagement 3 Comments

July 7, 2017 By e-Patient Dave 7 Comments

Hospital advertises “Private suites. Caring staff. Room for family.” Bring it on! :-)

"Private suites. Caring staff. Room for family." It's an advertising draw for maternity - let's have it in all care!

“Private suites. Caring staff. Room for family.” Woohoo!

On the way home last night I drove past this billboard, turned around, and went back to snap this photo. See, hospitals know that if we have a good maternity experience we’re more likely to come back when sick, so they offer this.

Fine with me, but when we DO come back, shouldn’t we get what they promoted?? Let’s ASK them to provide it, for ALL healthcare! Otherwise it’d be kind of a bait & switch, now wouldn’t it. :)

Empowered patients & families praise ’em when they do well, and when they don’t, we ask for what we need. Do it!


Edit: In a comment below, @MightyCasey points to another factor I should have noticed: while hospital marketing departments are promoting the service provided in their maternity suites, the grim reality remains that the US has the worst maternal mortality rates in the developed world. Here’s the chart from one of the NPR posts Casey links to, which uses data from a big (38 page) article in Lancet last year. Look at US healthcare’s performance in the past generation – this is the number of dead mothers per 100,000 live births; :

In short, while the marketing is ramping up, actual delivery of maternal care is getting much worse, especially compared to what other developed nations are doing.

China, for instance (not shown in this graph) has improved since 2000 from 85.2 maternal deaths to 17.7, while we’ve gone from 17.5 to 26.4. This matches my recent post on the e-patient blog about “amenable mortality,” which is whether a system actually delivers the care that it knows how to do.

 

Filed Under: Patient-centered thinking, Patients as Consumers 7 Comments

June 28, 2017 By e-Patient Dave 6 Comments

Video: What do empowered and engaged really mean?

Short link to this post: dave.pt/empoweredengaged or bit.ly/empoweredengaged

After talking to people for months about this same important question, I decided to get modern and post it on the internet. :-)  8½ minute video – slides with narration. (Email subscribers, click the headline to come online and watch.)

Filed Under: Participatory Medicine, patient engagement, public speaking 6 Comments

June 22, 2017 By e-Patient Dave Leave a Comment

Week in review: writings elsewhere

Source: Wikipedia

This isn’t the only place I write – other places include e-patients.net (the blog of the Society for Participatory Medicine), the BMJ blog, and occasionally others. In every case it’s something relevant to my mission, so I’m going to try posting here, occasionally, links to things I’ve written elsewhere. These are from the past two weeks. (Okay, so this time it’s weeks in review…)


June 7, e-patients.net:

From the UK: “Habits of an Improver”

For people working to create real change: “The habits of an improver offers a way of viewing the field of improvement from the perspective of the men and women who deliver and co-produce care on the ground …”


[Read more…]

Filed Under: Digests Leave a Comment

June 16, 2017 By e-Patient Dave 3 Comments

The effectiveness of the US health system, in one graph

I’ll leave you with this thought for the weekend.

After years of study of healthcare around the world, listening to an immense number of arguments about what’s important and what works and doesn’t, it’s all summed up in this one picture. The Y axis is life expectancy; the X axis is cost. This graph has been tweeted furiously and often lately by health journalist @DanMunro. (More on him below.)

You can easily see that US health costs per capita are way, way, way out of whack with the rest of the world. And, the life expectancy we get for it is years worse than the countries that cost 2-3x less.

Some will argue bitterly that the facts aren’t relevant, or a hundred other arguments.  I’ve lost interest in those arguments, because they’re all about rationale, and no rationale is worth a damn if the outcomes they’re trying to explain don’t match the rationale.

[Read more…]

Filed Under: cost cutting edition, Patients as Consumers, The Big Ugly 3 Comments

June 8, 2017 By e-Patient Dave Leave a Comment

Evolution 4: 2009 part 2 – a health I.T. “information trainwreck”

Screen capture from the Information Quality Trainwrecks blog’s post about what happened with my data. (I’m not making this up.)

Fourth in a series of retrospective posts, reviewing the ten years since my cancer and how my shifting perspective has altered what I’ll be doing from now on.

I’m generally doing one post per year, but so much happened in 2009 that it’ll take several. In particular, this episode in the spring of 2009 had such unexpected impact that I’ve had to think a lot about what to say. Sorry for the delay, but as you’ll see, this is an example of the important question that arose here.


In May 2008 my hospital had announced that their Google Health interface was live:

… a patient, with their consent and control, can upload their records to Google Health in a few keystrokes. There is no need to manually enter this health data into Google’s personal health record, unlike earlier PHRs from Dr. Koop, HealthCentral and Revolution Health. …

[Read more…]

Filed Under: Evolution Leave a Comment

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