e-Patient Dave

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December 10, 2019 By e-Patient Dave 2 Comments

Principle 4: Related myth: “Count on scientists to find what needs to be found. Nobody else could.”

Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.

[Read more…]

Filed Under: superpatients 2 Comments

December 9, 2019 By e-Patient Dave Leave a Comment

Principle 3: Don’t expect docs to know everything and others to know nothing.

Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.

Principles #1 and #2 were about what science is – essential concepts for people who want to extend the frontier. Today we start addressing where to look for the best advice.

It’s a myth that doctors can be counted on
to know what’s dependable
and nobody else can.

[Read more…]

Filed Under: superpatients Leave a Comment

December 8, 2019 By e-Patient Dave 9 Comments

Principle 2: Not all published science is good science.

Continuing the series started Friday – fourteen foundation truths to set the stage for the upcoming book Superpatients: Patients who extend science when medicine’s out of answers.

Principle #1 said that good science is measurable, verifiable, and reproducible. Here’s #2, which is a shocker to a lot of people. As the articles linked below say, it’s a big problem for doctors, not just for patients:

[Read more…]

Filed Under: superpatients 9 Comments

December 6, 2019 By e-Patient Dave 4 Comments

Superpatient principle #1: Good science is measurable, verifiable, and reproducible

I’ve been writing (and speaking) about this Superpatients concept and book for more than a year, and it was stuck for the longest time as I groped for some organizing context in which to explain everything. I mean, here we have all these amazing stories of amazing people who’ve done remarkable things, with some common themes weaving in and out, but it just didn’t have any framework on which to hang those themes. And without a framework, I can’t explain anything.

[Read more…]

Filed Under: superpatients 4 Comments

November 18, 2019 By e-Patient Dave Leave a Comment

Help finalize my new “Superpatients” book!

This is such big news that last weekend I made over my home page with this at the top:

It’s the banner from the cover of my new book Superpatients: Patients who extend science when medicine’s out of answers.

[Read more…]

Filed Under: books, Culture change, superpatients Leave a Comment

September 12, 2019 By e-Patient Dave Leave a Comment

Call for entries: four patient innovators will win a trip to Amsterdam! Are you one?

Have you done something useful with your medical data to help manage your health? (Or someone else’s)

Perhaps others would find it useful… either your exact tool or your general method! In any case, share it with us, and maybe you’ll get brought to Amsterdam for …

[Read more…]

Filed Under: Culture change, FHIR, Health data, Innovation, Participatory Medicine, patient engagement, Patient-centered tech, Patient-centered thinking, superpatients Leave a Comment

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