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November 18, 2019 By e-Patient Dave Leave a Comment

Help finalize my new “Superpatients” book!

This is such big news that last weekend I made over my home page with this at the top:

It’s the banner from the cover of my new book Superpatients: Patients who extend science when medicine’s out of answers.

[Read more…]

Filed Under: books, Culture change, superpatients Leave a Comment

November 1, 2019 By e-Patient Dave Leave a Comment

A tale of two patients, redux

This is something I rarely do: I’m reposting, verbatim, a previous post, because its relevance has accelerated. Please give it another read.


In June I wrote here about the ten part blog series I recently did on Tincture, about why I believe the HL7 FHIR standard promises to be so important in achieving the long-felt need for patients to have access to every bit of their health data … to “let patients help” improve care, as my book and TED Talk have said for YEARS. But last fall I gave a talk that expressed my impatience. The title:

“From ‘Let Patients Help’ to ‘Get Out of My Way’:
why some patients want ALL their data now”

[Read more…]

Filed Under: FHIR, Health data, Innovation Leave a Comment

October 30, 2019 By e-Patient Dave 2 Comments

FHIR #DevDays announces Patient Innovator Track finalists: two companies, two patients!

The organizers of the FHIR #DevDays conference next month have announced the four finalists who will come to Amsterdam to present their ideas to a panel of judges. I’ll copy/paste here from the conference’s Patient Innovator Track page:


The following applicants have been invited to present their achievement on Wednesday, November 20: [Alphabetically by presenter’s name]

[Read more…]

Filed Under: FHIR, Health data, Innovation, patient engagement, Patient-centered tech, Uncategorized 2 Comments

October 22, 2019 By e-Patient Dave Leave a Comment

Facebook debate at MCSMN: Links for background and follow-up

The 2019 Mayo Clinic Social Media Network event

Tuesday, Oct. 22, 2019: I’m at the Mayo Clinic Social Media Network’s #MCSMN annual conference, where at 4 pm CT I’ll participate in this debate:

Resolved: Facebook’s disregard for user privacy should compel responsible hospitals to abandon the platform.

[Read more…]

Filed Under: Uncategorized Leave a Comment

September 12, 2019 By e-Patient Dave Leave a Comment

Call for entries: four patient innovators will win a trip to Amsterdam! Are you one?

Have you done something useful with your medical data to help manage your health? (Or someone else’s)

Perhaps others would find it useful… either your exact tool or your general method! In any case, share it with us, and maybe you’ll get brought to Amsterdam for …

[Read more…]

Filed Under: Culture change, FHIR, Health data, Innovation, Participatory Medicine, patient engagement, Patient-centered tech, Patient-centered thinking, superpatients Leave a Comment

June 22, 2019 By e-Patient Dave 7 Comments

A tale of two patients: the difference #FHIR hopes to make with free-flowing data

On Friday I wrote here about the ten part blog series I recently did on Tincture, about why I believe the HL7 FHIR standard promises to be so important in achieving the long-felt need for patients to have access to every bit of their health data … to “let patients help” improve care, as my book and TED Talk have said for YEARS. But last fall I gave a talk that expressed my impatience. The title:

“From ‘Let Patients Help’ to ‘Get Out of My Way’:

why some patients want ALL their data now”

[Read more…]

Filed Under: FHIR, Innovation 7 Comments

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