e-Patient Dave

Power to the Patient!

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May 31, 2018 By e-Patient Dave Leave a Comment

Announcing the “Power of the Patient” podcast

I’ve started a podcast, and you can really help by giving it a rating and review on iTunes, as my friend Dr. Leslie Kernisan just did!

Fantastic much-needed information to help people get better healthcare ★★★★★

by Leslie Kernisan
I’ve long been an admirer of E-patient Dave’s commitment to helping patients and health providers work together better. Great to see him finally spreading the word about participatory medicine via a podcast! I’m a doctor and will be recommending this much-needed podcast to patients and others.

Why do I ask this? Because when people go searching for podcasts on iTunes (the mega-granddaddy of all podcast places), the best search ranking goes to podcasts with lots of good reviews. You can help!

[Read more…]

Filed Under: podcast Leave a Comment

May 23, 2018 By e-Patient Dave Leave a Comment

A note to email subscribers

Yesterday’s post contained a video, but that wasn’t apparent to email subscribers. The email system I use only sends the text, for some reason, and at bottom says “This posting includes an audio/video/photo media file: Download Now“, which linked only to a graphic.

Stupid email system. I usually give instructions in the body of the post: “Email subscribers, click the headline to come online and see the video.” But I forgot – sorry; click here to view yesterday’s post (and see the video). I hope to get a better email system for the blog!

Filed Under: Uncategorized Leave a Comment

May 23, 2018 By e-Patient Dave 1 Comment

From Paternal Care to Autonomy and Emancipation (15 minute slidecast)

For the past several years a number of themes have repeatedly arisen in my work that aren’t widely discussed elsewhere, and I’ve wanted to make them available to wider audiences, so I’ve started recording occasional “slidecasts” – I play the slides on my computer and narrate. Here’s the latest. It’s a core topic in rethinking the patient-provider relationship: paternal caring, which is necessary in some situations, vs the increasing shift to patient empowerment, autonomy, and even emancipation – the removal of constraints.

I did this for my head & neck cancer patient friends in New Zealand, whom I met during my fellowship last fall. We’ve kept in touch on their Facebook group. On Thursday two of them, Maureen Jansen and Tammy von Keisenberg, are speaking about “health literacy” – a subject that’s misunderstood far too often, and which is often tied to discussions of whether patients should or can be independent to one extent or another. Food for thought.

Thanks once again to the sponsors and organizers of that fellowship: Spark Revera (New Zealand’s telecomms company, totally into the emerging world of e-health) especially @eHealthDoc Will Reedy MD, and Waitemata District Health Board, especially head & neck cancer surgeon David Grayson MD @Sasanof and its “i3” innovation center headed by Dr. Penny Andrew.

Filed Under: Culture change, Participatory Medicine, patient engagement, Patient-centered thinking, slidecasts 1 Comment

April 30, 2018 By e-Patient Dave Leave a Comment

Long-term Survivorship Care after Cancer: Report from the National Academies

Email subscribers, to see the multimedia below, you may need to click the headline to view this online.

Last July I participated in a workshop on life after cancer at the National Academies of Sciences, Engineering, and Medicine in Washington. They’ve just published the final report, Long-term Survivorship Care after Cancer Treatment: Proceedings of a Workshop. It’s a free 160 page PDF.

[Read more…]

Filed Under: Advisory work, Events, Health policy, Patient-centered thinking, Science of Pt Engmt Leave a Comment

April 13, 2018 By kristin.gallant Leave a Comment

Flaming dissent on the roles of patients – what’s morally right for us(!), part 1

I keep seeing patterns of thought that I frankly think are pretty benighted. With luck, shedding some light on them will help. This one is so STUCK in darkness that I’ve decided to publish a little series on the subject.

First is this editorial about patients in research. Next will be what happened when a researcher I know became a patient/family member. Then will be how this fits into a century-long timeline of progressing toward patient autonomy … which of course requires a matching increase in patient responsibility.

[Read more…]

Filed Under: Clinical trials, Culture change, Participatory Medicine, patient engagement, Patient-centered thinking, Uncategorized Leave a Comment

April 12, 2018 By kristin.gallant Leave a Comment

A blast from the past, yet still fresh: “The Future of Patients”

I just ran across this classic video from WAY back – 2010, when the “e-Patient Connections” conference was the best thing on the circuit for our kind of thinking. Pharma marketing wizard Kevin Kruse created the script, and my chorus buddy Fred “Houston” Gallagher helped me record my part in his basement studio.

[Read more…]

Filed Under: Culture change, public speaking Leave a Comment

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