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October 12, 2021 By e-Patient Dave Leave a Comment

New podcasts and webinars, #2: Harry Glorikian’s “The Future You” (two parts)

I mentioned last week that there’s been an upsurge in people reaching out to carry forward the message we e-patients have been evangelizing for ages. Hallelujah!

That post was an interview for the HIMSS Learning Network. Today’s is really exciting: Harry Glorikian, author of MoneyBall Medicine, has a new book coming, The Future You, about the new world of data-empowered medicine, with a rebranded podcast to match, and he asked me to be his first guest! Ya think I was ready for that?? It went great – so great he made it his first two episodes!

[Read more…]

Filed Under: FHIR, Health data, Innovation, Participatory Medicine, patient engagement, Patient-centered tech Leave a Comment

May 12, 2021 By e-Patient Dave 9 Comments

Question for the diabetes community: should Freestyle readings match finger sticks?

Screen capture from Peer To Peer Health Advice video

This is an exercise in “peer to peer health advice.” I’m asking for advice, from “the DOC” (diabetes online community) – more on that below.

Here’s a message I received from someone who’s really peeved about a technology for managing his Type 2 diabetes. Does your experience match his? Should his digital device match the results from finger sticks? If not, for heaven’s sake why?

[Read more…]

Filed Under: diabetes, e-patient requests, Patient-centered tech Tagged With: cgm, diabetes, e-patients, freestyle libre, type 2 diabetes 9 Comments

November 23, 2020 By e-Patient Dave 2 Comments

#LongCOVID patient researcher Hannah Wei kicks off FHIR DevDays

For two years I’ve blogged about DevDays, the twice-annual software developer conference for the FHIR software standard for health data. November 17-20 was this fall’s edition, and in the opening session, Hannah Wei gave a keynote unlike any other.

Fifteen minute video:

[Read more…]

Filed Under: Coronavirus, FHIR, Health data, Innovation, Patient-centered tech Tagged With: coronavirus, covid, health data, long haul, longcovid, patient centered care 2 Comments

May 18, 2020 By e-Patient Dave 1 Comment

A glimpse of how FHIR works, for people who’ve fought to get their data

This is a quick post without a lot of explanation, targeted to perhaps a small number of people but perhaps also intriguing to a lot more. This image is a quick summary of the post below:

[What’s FHIR? I’ve been blogging about it for more than a year; here are all the posts, newest first, though if you’re new to the concept please start here. This post doesn’t require understanding FHIR’s significance, but it sure helps.]

The context: someone needs to get their health data.

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech 1 Comment

April 21, 2020 By e-Patient Dave 3 Comments

Tech-savvy patients: enter the “Patient Innovator Track” at FHIR DevDays!

Deadline Friday, May 22: See timeline below, learn more on the track page, then submit your application. Prizes, fame, community!

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech, Patient-centered thinking 3 Comments

November 27, 2019 By e-Patient Dave 1 Comment

And the Patient Innovation winner is …

At the closing session Friday in Amsterdam, Grahame Grieve (“the father of FHIR”) hands a big check (so to speak) to patient John Keyes, creator of BloodNumbers. He created it for his personal use, but he’s open to adapting it for other uses.

John Keyes, blood disease patient who created BloodNumbers, a simple app to track his ongoing test results.

[Read more…]

Filed Under: FHIR, Health data, Innovation, Patient-centered tech 1 Comment

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