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March 27, 2014 By kristin.gallant 3 Comments

“Patients + Providers + Technology = Engagement” (Guest post by Patti Brennan)

Patti Brennan
Patricia Flatley Brennan, PhD, RN, PhD – University of Wisconsin Madison, School of Engineering

This is a real pleasure – a guest post by Patti Brennan (@PattiFBrennan), one of the people I admire most in the world of improving healthcare through patient engagement. I first met her through Project HealthDesign, one of the best programs sponsored by the Robert Wood Johnson Foundation: “Rethinking the Power and Potential of Personal Health Records.” I’ve also shared a panel or two with her at industry events – not nearly enough to suit me, though. :-)

Last year Project HealthDesign completed. One of its key subject areas was “ODLs” – observations of daily living. Here she explains the idea and lists some exemplary work she’s seen.

This guest post (I added some boldfacing) is long overdue – I’m just too busy for my own good sometimes! Thanks for this honor, Patti.

============

Patients + Providers + Technology = Engagement

There’s a growing group of patient advocates, people like Hugo Campos or ‘our own’ Dave deBronkart (e-Patient Dave), who are calling for patients to be active and equal partners in their health—and that’s a goal that as a nurse I wholeheartedly support. At Project HealthDesign, we have worked to encourage two-way conversations between patients and clinicians, with both parties held in equal status. Clinicians are the trained experts in health care, but patients are the experts in their own lives and their own bodies. We believe that when both parties work together, more can be done to improve health care than either can do alone.

The key to forging these relationships and creating successful partnerships between patients and providers is technology.

[Read more…]

Filed Under: e-patient resources, Health data, patient engagement, Patient-centered tech 3 Comments

March 20, 2014 By e-Patient Dave Leave a Comment

Web keynote: “Successful Engagement Strategies for your ACO”

This was Thursday, march 20. The archive will be available for viewing online, before too long.
Krames webinar screen grab Ma

Successful Engagement Strategies
for Your ACO

It’s sponsored by Krames Staywell (Twitter @KramesStayWell), a visionary patient engagement company. Why do I say visionary? Because they were the first company to ever hire me for an event. It was a private client meeting in Manhattan, June 2010.

I’ve long been saying that patient engagement will someday be seen as a real business with both commercial and social value; Krames Staywell was the first to act on it, and now we’re doing it again – in a world that’s vastly changed.

Filed Under: Business of Patient Engagement, Events, Patient-centered tech Leave a Comment

February 2, 2014 By e-Patient Dave 2 Comments

Finally! Composite video of my call to action at Blue Button Plus Developer Challenge (New York, July 22)

Blue Button Plus event artLast month I blogged that a “lost speech” had finally surfaced. It was my closing speech at an event last July, and said why this moment (this year, this series of conferences) is an essential turning point:

“The event was a conference conducted by our Department of Health & Human Services to educate and encourage software developers about the “Blue Button Plus” initiative. … which is really important for the future of health IT, and not just in America; this innovation initiative will change what patients and families are capable of.”

And I said:
[Read more…]

Filed Under: Events, Government, Health data, Health policy, patient engagement, Patient-centered tech, public speaking, Speaker Academy 2 Comments

July 19, 2013 By e-Patient Dave 5 Comments

Wanted: an “issue tracker / diary” tool

1799 gout illustration by James Gillray, public domain, Wikimedia
1799 gout illustration by James Gillray (Wikimedia) (Click for NY Times gout article where I found this)

This is a rough software idea that anyone is welcome to take and make a product out of, if it doesn’t exist. Or maybe someone will say, “JEEZE, Dave, I’ve been trying to tell you for years that this is what we DO!”

Any vendor with such a product is welcome to say so, commercially with links, in the comments.

I want an easy tool – ideally an app with matching website – that helps me keep track of recurring symptoms and what I’m doing about them.

At 63, I have a number of things going on that probably won’t amount to anything, but when conspicuous out-of-the-ordinary symptoms persist, I’d like to keep track of them. At the moment it’s my feet: in March I started having intermittent pain that comes and goes. (See An encounter with the Swiss medical system.) Back then it appeared to perhaps be gout (it felt like that picture.) But now it seems not to be.

Pain gets your attention, and quickly trains you to want to manage it. Last week a mild episode started, and this time it hasn’t cleared up by itself. Then the other morning I woke up with swelling and burning pain. It was so bad that I wondered if I have a recurrence of my cancer, in the form of bone mets (metastases).

[Read more…]

Filed Under: e-patient resources, Patient-centered tech 5 Comments

June 15, 2013 By Ileana 1 Comment

Newest speech video: SAS Institute health analytics – business / tech / data conference

SAS speech video page screen capture

My videos page has recordings of various speeches. Here’s the latest – and, some are saying, my best. It was a month ago in Cary, North Carolina, at a big event conducted by SAS called “Health Analytics: From Big Insights to Big Breakthroughs.” It’s 56 minutes long.

Here’s the direct link to the video. If you’re not already registered on that site, you may need to register here.

Not all the slides are shown in the video; here’s a copy of them on Slideshare. Slideshare’s display software is pretty weak compared to what I do with PowerPoint :-) so some of the layouts display wrong on their site, but you can get the idea.

Don’t miss Peter Diamandis’s talk that day

Near the beginning I mention it. Here’s the link.

Filed Under: Events, Health data, patient engagement, Patient-centered tech 1 Comment

June 7, 2013 By Stales 3 Comments

Make it EASY to manage my pillbox!

Blue Button logo

Vote us up! (Alicia Staley and me)
Click to visit our proposal on the site, register if you need to,
and use one of your votes for this awesome idea!

(Or all three of your votes. :-) It’s allowed.)

Have you ever seen the set of pills that have to be managed for a person with a slew of prescriptions?  It’s nuts. What’s even more nuts is that with all we pay for healthcare and computers in this world, there’s no software anywhere that makes it easy to do the right thing. Let’s change that!

(I’m not complex at the moment (at least my prescriptions aren’t), but when I was sick I sure was. Farther down is the true story that gave me this idea.)

This is my submission for the “Blue Button CoDesign Challenge” that was sprung on us last Monday by the good folks at Health & Human Services, who are doing this radically modern thing – unusual for government, eh?  They came up with a fascinating challenge and are opening it to the public, with prizes! For details you can check out the challenge site.

Here’s my proposal. Over the weekend I’ll flesh out this blog post with more details, but for starters Friday afternoon, here’s the big idea:

Build me a Blue Button enabled tool that….

… makes it easy to manage our frickin’ prescriptions and take the right pills at the right time!

My doctors’ computers know my prescriptions and when I’m supposed to take them, right? So do the pharmacies. And computers can mash up all kinds of information from different sources, and organize it, and display it clearly, right? So why do they make ME figure out when I should take what?

Let’s have an app that can read all my prescriptions, and organize them into times of day. Even better, it could print out my pillbox and add pictures of what goes in each square. Why not?? Isn’t that what computers do – make complex information easy??

[Read more…]

Filed Under: e-patient resources, Government, Health data, Patient-centered tech 3 Comments

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