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March 28, 2018 By e-Patient Dave 6 Comments

Alumni club dinner: How e-patients can help healthcare achieve its potential

After eight years of speeches at conferences, I’ve observed that while medicine achieves incredible miracles that were impossible a generation ago – like saving my sorry life – it still falls short of potential more often than necessary. Lots of people write big fat books about it, but some problems don’t change, which raises the question: what can we tell consumers of the system, patients, that will help them get the best care when they’re in need?

So that’s a new series of speeches I’ll be doing, not just at big conferences but at local meetings in cities and towns, hospitals and community centers. These talks aren’t designed to change the healthcare system much; to the contrary, they’ll empower ordinary people who use the system to help the system do its best.

[Read more…]

Filed Under: Aging, Culture change, Health data, Innovation, patient engagement, Patients as Consumers, public speaking 6 Comments

March 1, 2018 By e-Patient Dave 2 Comments

We must democratize healthcare.

Revolutionary fist with words "liberate, empower, progress, transform, release, set free, break outTo achieve its potential, healthcare must be democratized.

I’ve reached this conclusion after hundreds of speaking events in eighteen countries over nine years. For me “speaking” has always involved a lot of listening and learning, and the more I’ve learned, the more I’ve puzzled over this paradox:

  • Medicine can save incredibly more lives today than ever (evidenced by the extraordinary growth in elder population in my birthday post “65!”)
  • Yet we still have terrible shortfalls: we have sewage leaks in operating rooms; we have medical errors causing hundreds of thousands of deaths in the US every year; and much more.

[Read more…]

Filed Under: Culture change, Evolution, Innovation, Patient-centered thinking, Patients as Consumers 2 Comments

February 15, 2018 By e-Patient Dave 1 Comment

New position paper: The Digital Health Manifesto

Digital Health Manifesto screen captureIn my years of work to optimize the future of healthcare, with hundreds of conferences and meetings in eighteen countries, people’s focus has shifted as the industry moves forward. For years the focus was on patient empowerment through access to the medical record. Today the greatest attention is on digital health: wristbands like my Fitbit, radical patient-power tools like OpenAPS, and even simple connected devices like my Nokia / Withings wi-fi bathroom scale. Through it all, the unifying theme of digital health is that data enables power – an updated version of “knowledge is power.”

But I’ve also observed that few people are savvy about both medicine and technology, which has led to medical people not seeing the potential and tech people being seriously naive about how complex medicine is, and both parties failing too often to understand that it’s all about behavior change.

One of the few people I’ve worked with who completely gets it is the young, visionary “Medical Futurist” Dr. Bertalan Meskó, at Semmelweis University in Budapest. I had the pleasure of lecturing in his course a few years ago, and we have continued to collaborate.

[Read more…]

Filed Under: Uncategorized 1 Comment

December 15, 2017 By e-Patient Dave 4 Comments

Notes for NAM’s Action Collaborative on Clinician Well-Being and Resilience

Infographic from NAM with key statistics on clinician wellbeing
Infographic from NAM with key statistics on clinician wellbeing

I’m participating today as a “consumer/patient” voice in a meeting on clinician burnout, part of a project of the National Academy of Medicine. I was going to be there in person but a bad and contagious coughing cold kept me home, so I’m watching and listening remotely.

Remote participants often don’t get as much chance to speak up, so I’m doing what empowered people do: find another way to get heard.:-)


Burnout is important to me, because I’m deeply grateful to the highly trained people who saved my life 11 years ago, and I want them to have a good life. But look at the statistics in the project’s infographic here. It drives me nuts (and makes me sad) that the doctors and nurses who put in all those years of training, and gained their years of experience, are so often unhappy with their working life.

[Read more…]

Filed Under: Health policy, Participatory Medicine 4 Comments

November 14, 2017 By e-Patient Dave 6 Comments

American healthcare: a malignant tumor that can’t stop killing its host

As I said recently, I’ve been writing less here for a number of reasons. One is that I’ve been asked to write on other sites. Another, a sobering factor, as that after years of study, I’ve concluded that the American healthcare system has tied itself in a fatal knot. The post shown here, on the Patient Power blog, is an example of both.

[Read more…]

Filed Under: cost cutting edition, Health policy, Patients as Consumers 6 Comments

November 8, 2017 By e-Patient Dave 2 Comments

“Only two of our sewage leaks were in ORs.” KNOW YOUR HOSPITAL’S SAFETY GRADE.

Snapshot of USA Today article, Sept. 17, 2017.

I am way behind in things I want to blog about – I started this post eight weeks ago. It’s been a combination of crazy travel, lack of sleep, and a head-spinning disbelief about how messed up medicine is, on so many things, while in other cases it accomplishes stunning saves (like saving my life). Such wild swings in quality always mean a system is out of control, which means you better make a point of learning what you can about who manages things best.

Here’s one of those topics. I hope to be able to dump out all these thoughts, good and bad, in the coming weeks.

[Read more…]

Filed Under: patient safety 2 Comments

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