e-Patient Dave

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June 6, 2018 By e-Patient Dave Leave a Comment

Skeptics ask why patients would even WANT their medical images. We asked on Facebook.

No wonder people get tired of fighting to improve social attitudes. This one is so obvious, yet we keep getting asked the same outdated questions. What amazes me, though, is that this time the skeptical scoffing comes from uninformed innovators, not old-timers! Makes me want to bang my head on the desk.

Last week I posted here about my talk at the SIIM conference in DC, including the rousing favorable response from the audience on Twitter. It appears the popularity has aroused scoffing skepticism AGAIN: “What would patients even DO with their images?? They don’t know how to read them…”

Notice how that thinking presumes the only thing a patient could do with the image is try to play doctor!  So I blogged a bunch of the stories patients told me on Facebook in response to my request.  Have a look at the post and the fascinating range of stories people shared. How wrong the skeptics are, when they think a patient is trying to step into the doctor’s shoes. Some do in fact become good enough to spot things like a missed tumor(!) – but in most cases the patient does something that adds to what doctors normally do. Isn’t that interesting? Go read.

 

 

Filed Under: Health data, Participatory Medicine, patient engagement, Patients as Consumers, Uncategorized Leave a Comment

June 1, 2018 By e-Patient Dave 3 Comments

A speech to remember: opening keynote at SIIM on “Inspiring Collaboration”


Twitter photo by Rasu Shrestha MD, MBA, Chief Innovation Officer at UPMC

There are lots of ways to measure the success of a speech. One is what the audience says on Twitter during the talk.  I’ll let them speak for themselves, below.

[Read more…]

Filed Under: Participatory Medicine, patient engagement, Patient-centered thinking, public speaking 3 Comments

May 23, 2018 By e-Patient Dave 1 Comment

From Paternal Care to Autonomy and Emancipation (15 minute slidecast)

For the past several years a number of themes have repeatedly arisen in my work that aren’t widely discussed elsewhere, and I’ve wanted to make them available to wider audiences, so I’ve started recording occasional “slidecasts” – I play the slides on my computer and narrate. Here’s the latest. It’s a core topic in rethinking the patient-provider relationship: paternal caring, which is necessary in some situations, vs the increasing shift to patient empowerment, autonomy, and even emancipation – the removal of constraints.

I did this for my head & neck cancer patient friends in New Zealand, whom I met during my fellowship last fall. We’ve kept in touch on their Facebook group. On Thursday two of them, Maureen Jansen and Tammy von Keisenberg, are speaking about “health literacy” – a subject that’s misunderstood far too often, and which is often tied to discussions of whether patients should or can be independent to one extent or another. Food for thought.

Thanks once again to the sponsors and organizers of that fellowship: Spark Revera (New Zealand’s telecomms company, totally into the emerging world of e-health) especially @eHealthDoc Will Reedy MD, and Waitemata District Health Board, especially head & neck cancer surgeon David Grayson MD @Sasanof and its “i3” innovation center headed by Dr. Penny Andrew.

Filed Under: Culture change, Participatory Medicine, patient engagement, Patient-centered thinking, slidecasts 1 Comment

April 13, 2018 By kristin.gallant Leave a Comment

Flaming dissent on the roles of patients – what’s morally right for us(!), part 1

I keep seeing patterns of thought that I frankly think are pretty benighted. With luck, shedding some light on them will help. This one is so STUCK in darkness that I’ve decided to publish a little series on the subject.

First is this editorial about patients in research. Next will be what happened when a researcher I know became a patient/family member. Then will be how this fits into a century-long timeline of progressing toward patient autonomy … which of course requires a matching increase in patient responsibility.

[Read more…]

Filed Under: Clinical trials, Culture change, Participatory Medicine, patient engagement, Patient-centered thinking, Uncategorized Leave a Comment

March 28, 2018 By e-Patient Dave 6 Comments

Alumni club dinner: How e-patients can help healthcare achieve its potential

After eight years of speeches at conferences, I’ve observed that while medicine achieves incredible miracles that were impossible a generation ago – like saving my sorry life – it still falls short of potential more often than necessary. Lots of people write big fat books about it, but some problems don’t change, which raises the question: what can we tell consumers of the system, patients, that will help them get the best care when they’re in need?

So that’s a new series of speeches I’ll be doing, not just at big conferences but at local meetings in cities and towns, hospitals and community centers. These talks aren’t designed to change the healthcare system much; to the contrary, they’ll empower ordinary people who use the system to help the system do its best.

[Read more…]

Filed Under: Aging, Culture change, Health data, Innovation, patient engagement, Patients as Consumers, public speaking 6 Comments

October 13, 2017 By e-Patient Dave Leave a Comment

Larry Weed, 1975: “The patient must have a copy of his own record”

This week I’ve had two new blog posts published on other blogs. This one’s close to my heart.

Dr. Larry Weed, who died in June, was a legendary physician, way way WAY ahead of his time in his vision for computers in healthcare, but also for his clear vision that if it’s your health, you need to be actively involved in managing it. AthenaHealth, a medical records system vendor, commissioned me to write a post about him, and it went live yesterday.

I had found a copy of his amazing 1975 book Your Health Care and How To Manage It, and found some astounding things in it. Please go read the post and see the quotes.

Bringing method to medical practice

[Read more…]

Filed Under: books, Culture change, patient engagement Leave a Comment

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