I’ve been writing about Facebook recently. There’s lots more disturbing news about them, but it turns out some of the deeper issues are broader than one company. This is one that’s worth knowing, as we start to understand the values – and risks – of online patient communities.
During the increasingly contentious run-up to the 2016 election, several of us noticed (I know because they/you mentioned it on FB) that something had changed – the world seemed to be getting crazier, with people at both ends of the political spectrum unable to comprehend how the OTHER end could be so stupid, so ignorant, of what was blindingly apparent to them.
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After eight years of speeches at conferences, I’ve observed that while medicine achieves incredible miracles that were impossible a generation ago – like saving my sorry life – it still falls short of potential more often than necessary. Lots of people write big fat books about it, but some problems don’t change, which raises the question: what can we tell consumers of the system, patients, that will help them get the best care when they’re in need?
Book chapter: “Who Moved My Facts? Patient autonomy and the evolution of infrastructure mean best available knowledge is not where it used to be.” Chapter in 