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April 28, 2019 By e-Patient Dave 8 Comments

What’s up with the US health system?? (What I’m doing in 2019, episode 1)

Click to enlarge this composite of images from previous posts

I haven’t been blogging nearly as much as I did five years ago, largely because my early blogging was all about trying to figure out “what the heck is up with the American healthcare system???” and it’s now been two years since I had any new realizations. Here’s a summary of that, then some quick hits on recent and upcoming events.

No, wait – this part turned out long, so I’ll continue tomorrow with the “quick hits.” For today, here’s the baseline I reached two years ago.

[Read more…]

Filed Under: cost cutting edition, Evolution, Health policy, Patients as Consumers, The Big Ugly Tagged With: american healthcare, health costs, patient empowerment 8 Comments

April 11, 2019 By e-Patient Dave 4 Comments

50th anniversary of the first Our Bodies, Ourselves meeting! May 10, Boston

Updates May 8:

  • Address correction! It’s 120 Tremont St, not 20 Tremont St.
  • Not surprisingly, it’s sold out with waitlist. If you want to add yourself to the waitlist, write to cwhhr@suffolk.edu
Click image to register on Eventbrite.

I’ve often blogged and spoken about the many parallels between the women’s movement and the patient empowerment movement. Here’s one perfect quote from Miriam Hawley, one of the founders of the Boston Women’s Health Book Collective, whom I met last year:

[Read more…]

Filed Under: Culture change, Health policy, Innovation, Leadership Tagged With: culture change, feminism, our bodies ourselves, patient empowerment, patient engagement, women's health 4 Comments

March 18, 2019 By e-Patient Dave 1 Comment

#FHIR for non-technical professionals: a two-session course Tuesday-Wednesday

If you’re in the health data world, you’ve surely heard of FHIR. If you work in that world but you’re not a hands-on data wrangler, you might have heard of it but not really have a clue what it means in the real world.

Wouldn’t it be nice if there were a way to learn about it? There is. Register here.

[Read more…]

Filed Under: FHIR, Health data, Innovation 1 Comment

March 14, 2019 By e-Patient Dave Leave a Comment

Criminal investigation of Facebook begins

Chances are you’ve heard about this already but the news coverage hasn’t been saying what I think is significant, so I’m posting. The New York Times piece starts thus:

Federal prosecutors are conducting a criminal investigation into data deals Facebook struck with some of the world’s largest technology companies, intensifying scrutiny of the social media giant’s business practices as it seeks to rebound from a year of scandal and setbacks.

I heard about this while out for pizza with my chorus buddies after a performance. Friends on Twitter were talking about #FacebookDown, so I popped open my phone’s browser and got this: Facebook was down.

“Something went wrong” indeed. :-)

[Read more…]

Filed Under: Facebook Leave a Comment

February 28, 2019 By e-Patient Dave 6 Comments

For patient groups, leaving Facebook isn’t easy: the connections can be valuable

Graphic adapted from TNW (TheNextWeb)

My post January 7 about why I stopped participation on Facebook has drawn lots of discussion, which is great. In this era, it’s increasingly important for us all to THINK about the information that floats past our eyeballs: “Wait – who put this here??  Do I trust it?? What if it’s wrong??” 

It’s true for the news feeds that we watch (online or off), as well as everything we see on Facebook and everywhere else on social media. The hard truth is that sometimes what “broadcasters” show us (and make no mistake, Facebook is both a broadcaster and an editor, because it modifies what it shows you based on your past likes) is NOT a random feed of stuff that happened, but something chosen to keep YOUR eyeballs glued to YOUR screen. 

[Read more…]

Filed Under: Facebook 6 Comments

February 27, 2019 By e-Patient Dave Leave a Comment

Events and travels, winter 2019

It’s been a busy winter. Amid all the Facebook scandals and new government regulation work that’s going on, I thought I’d send an update on travels. Here are some visuals from a recent 17 day, six country, seven speech trip. (Fun facts: nine different hotels, and doing laundry in a Vienna laundromat that only takes instructions from a smartphone app.)

The background image is the HIMSS19 (health IT systems conference) logo repeated over and over and over and over, because that brutal exhausting conference is like that :-), and is the background of everything else.

Counterclockwise from left:

[Read more…]

Filed Under: Business of Patient Engagement, Events, Evolution, Health data, Health policy, Innovation, Leadership, Participatory Medicine, patient engagement, Patient-centered tech, public speaking, superpatients Tagged With: digital health, health data, health IT, public speaking Leave a Comment

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