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October 12, 2021 By e-Patient Dave Leave a Comment

New podcasts and webinars, #2: Harry Glorikian’s “The Future You” (two parts)

I mentioned last week that there’s been an upsurge in people reaching out to carry forward the message we e-patients have been evangelizing for ages. Hallelujah!

That post was an interview for the HIMSS Learning Network. Today’s is really exciting: Harry Glorikian, author of MoneyBall Medicine, has a new book coming, The Future You, about the new world of data-empowered medicine, with a rebranded podcast to match, and he asked me to be his first guest! Ya think I was ready for that?? It went great – so great he made it his first two episodes!

[Read more…]

Filed Under: FHIR, Health data, Innovation, Participatory Medicine, patient engagement, Patient-centered tech Leave a Comment

October 4, 2021 By e-Patient Dave 1 Comment

New podcasts & webinars #1: “Interoperability & Equity” for HIMSS

There’s been an interesting surge in evangelist activity recently: I’ve been involved in several podcasts and webinars, all giving new life to the “gimme my data” movement. Here’s one that went live today on the HIMSS Learning Network. (It’s free but you may need to register.)

[Read more…]

Filed Under: FHIR, Government, Health data, Media coverage, Participatory Medicine, patient engagement Tagged With: fhir, health data, interoperability, patient empowerment, patient engagement 1 Comment

November 23, 2020 By e-Patient Dave 2 Comments

#LongCOVID patient researcher Hannah Wei kicks off FHIR DevDays

For two years I’ve blogged about DevDays, the twice-annual software developer conference for the FHIR software standard for health data. November 17-20 was this fall’s edition, and in the opening session, Hannah Wei gave a keynote unlike any other.

Fifteen minute video:

[Read more…]

Filed Under: Coronavirus, FHIR, Health data, Innovation, Patient-centered tech Tagged With: coronavirus, covid, health data, long haul, longcovid, patient centered care 2 Comments

September 26, 2020 By e-Patient Dave Leave a Comment

“My doc’s practice closed. Need my chart. What do I do?”

That’s a paraphrase of the starting tweet in a valuable thread today from a colleague in OpenNotes, Cait DesRoches. Here are the tweets. (I hope this all comes through on the blog; email subscribers, if necessary, click the headline to read this online.)

Hey med records experts – I need a consult. My sis needs her records from an independent prac that closed. She’s tried calling. Where should she go next to escalate the request? She’s in NYC @GraceCordovano @HealthPrivacy @ePatientDave

— Cait DesRoches, DrPH (@cmd418) September 26, 2020
[Read more…]

Filed Under: FHIR, Health data Tagged With: health data, health IT, medical records, open notes, OpenNotes, patient advocates, patient empowerment Leave a Comment

June 26, 2020 By e-Patient Dave Leave a Comment

Olivier Karasira wins People’s Choice award at FHIR DevDays Patient Track

After last week’s FHIR DevDays conference, I blogged on Wednesday that Morgan Gleason had won the judges’ award in the Patient Innovator Track. There was another winner – for the first time we did a People’s Choice award, and it was won by Olivier Karasira, a man in Rwanda working on a remarkable project: “Turning Paper into FHIR in Africa.”

[Read more…]

Filed Under: FHIR, Health data, patient engagement Leave a Comment

June 24, 2020 By e-Patient Dave 1 Comment

Morgan Gleason, 21, wins the second FHIR DevDays Patient Track

Last week at the virtual DevDays conference (for the FHIR software standard that I’ve blogged about so much) we held the second Patient Innovator Track. Watch the winning pitch, 10 minutes long, from Morgan Gleason, fresh out of college. She describes her complex situation and how she’s learned to deal with it manually, and tells the FHIR developer community what she needs – what she wants them to help create, so she can walk into each doctor visit fully prepared without going through all the work she has to do now:

[Read more…]

Filed Under: FHIR, Health data, patient engagement Tagged With: devdays, fhir, health data, health IT, hl7, morgan gleason, patient innovation 1 Comment

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